Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project 321 N. Clark St. Chicago, IL 60654 312-988-5783 http://www.militaryprobono.org *The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.	American Bar Association/Military Lawyers http://www.americanbar.org/portals/military_law... *Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program http://www.esd.whs.mil/Directives/forms/dd0001_... *Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.	Easter Seals National Headquarters 230 W. Monroe St., Suite 1800 Chicago, IL 60606 (800) 221-6827 TTY 312-726-4258 (312) 726-1494 (Fax) http://www.easterseals.com *Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
EFMP & Me: Exceptional Family Member Program (EFMP) https://efmpandme.militaryonesource.mil *Use this tool to maneuver through the Defense Department's network of services and supports for families with special needs. No sign-up is required for service members and family members, but you can choose to create an account to save your progress and preferences.	Exceptional Family Member Program/All Branches/Mobile https://www.militaryonesource.mil/family-relati... Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs http://www.kidswaivers.org Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.	Medicaid Waiver dot Org http://medicaidwaiver.org *A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military One Source 800-342-9647 https://www.militaryonesource.mil/special-needs/ * A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.	Military Parent Technical Assistance Center 6316 S 12th St Tacoma, WA 98465 (253) 565-2266 (800) 572-7368 https://branchta.org E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association 3601 Eisenhower Avenue, Suite 425 Alexandria, VA 22304 http://www.militaryfamily.org E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.	Social Security Administration Information for Parents National Info. 1-800-772-1213 http://www.ssa.gov/pgm/links_ssi.htm *Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net http://statelocalgov.net/50states-military-vete... *State listings for Military and Veterans sites within the 50 United States.	Tennessee Department of Human Resources 1000 2nd Avenue, North Nashville, TN 37202 (615) 532-4000 http://www.tennessee.gov/humanserv
The National Guard Family Program https://www.jointservicessupport.org/fp/ *Click on Contacts & Resources to find your state program.	The National Resource Directory http://www.nationalresourcedirectory.gov The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance http://www.specialneedsalliance.org *Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.	United Cerebral Palsy (UCP) 1660 L Street, NW, Suite 700 Washington, DC 20036 (800) 872-5827 TTY (202) 973-7197 (202) 776-0414 (Fax) http://www.ucp.org *Contact for your local chapter. Excellent state-by-state resource guide.
United Way 701 N. Fairfax St. Alexandria, VA 22314 https://www.unitedway.org/local/united-states *Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
Advocacy
ADAPT 201 S. Cherokee Denver, CO 80223 303-733-9324 http://www.adapt.org E-mail: adapt@adapt.org *See Contact List for a chapter in your state.	ANCOR Foundation 1101 King Street, Suite 380 Alexandria, VA 22314 703-535-7850 http://www.ancorfoundation.org/ Email: ancor@ancor.org *The ANCOR Foundation is a 501(c)3 organization created to support the development of innovative programs and disseminate information that will improve the quality of life for people with disabilities.
Disability Law and Advocacy Center of Tennessee 50 Vantage Way, Suite 250 Nashville, TN 37228 1-615-627-0956 615-627-0964 (Fax) https://www.tals.org/node/172/disability-law-ad... Email: techsupport@tals.org *Disability Law & Advocacy Center of Tennessee (DLAC) advocates for the rights of Tennesseans with disabilities to ensure that they have an equal opportunity to be productive and respected members of our society.	Family Voices, Inc. 2340 Alamo SE, Suite 102 Albuquerque, NM 87106 (888) 835-5669 (505) 872-4774 (505) 872-4780 (Fax) http://www.familyvoices.org Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. To find a chapter in your state, scroll down to the map on the home page and click on your state.
Kids Included Together (KIT) 2013 H Street NW, Ste 620 Washington, DC 20006 (858) 225-5680 (619) 758-0949 (Fax) https://www.kit.org *Kids Included Together (KIT) specializes in providing best practices training for military and civilian community�based organizations committed to including children with and without disabilities into their recreational, child development and youth development programs.	Louisiana Developmental Disabilities Council 626 Main Street, Suite A Baton Rouge, LA 70821-3455 (225) 342-6804 (800) 450-8108 (225) 342-1970 (Fax) https://laddc.org Provides a wealth of self advocacy information. Linda recommends individuals check out the "Advocacy 101" section under "LACAN" then "How To" for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body along with other great legislative advocacy information.
National Gateway to Self-Determination Web Portal http://www.ngsd.org *This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.	Office for Civil Rights Headquarters U.S. Department of Health & Human Services 200 Independence Avenue, S.W. Washington, DC 20201 Call Center: 1-800-368-1019 TTD: 1-800-537-7697 https://www.hhs.gov/civil-rights/index.html Civil Rights for Individuals and Advocates. Enforces laws against discrimination based on race, color, national origin, disability, age, sex, and religion by certain health care and human services.
Patient Advocate Foundation 421 Butler Farm Road Hampton, VA 23666 (800) 532-5274 (757) 873-8999 (Fax) http://patientadvocate.org E-Mail: help@patientadvocate.org *Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.	Self Advocates Becoming Empowered 255 E. Osborn Rd, Suite 103 Phoenix, AZ 85012 https://www.sabeusa.org E-mail: Admin@sabeusa.org *To ensure that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves; opportunities to make new friends, and to learn from their mistakes. We are a national board of regional representatives and members from every state in the US.
State Councils on Developmental Disabilities/Administration for Community Living 330 C St SW Washington, DC 20201 (202) 401-4634 https://acl.gov/programs/aging-and-disability-n... Click on Program Contacts for your state's contact information. *State Councils on Developmental Disabilities (Councils) are federally funded, self-governing organizations charged with identifying the most pressing needs of people with developmental disabilities in their state or territory. The 56 Councils across the United States and its territories work to address identified needs by conducting advocacy, systems change, and capacity building efforts that promote self-determination, integration, and inclusion. Key activities include conducting outreach, providing training and technical assistance, removing barriers, developing coalitions, encouraging citizen participation, and keeping policymakers informed about disability issues.	The American Association of People with Disabilities (AAPD) 2013 H Street, NW, 5th Floor Washington, DC 20006 800-840-8844 (V/TTY) 202-457-0046 (V/TTY) 866-536-4461 (Fax) http://www.aapd.com *The American Association of People with Disabilities is the nation's largest disability rights organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.
The Bazelon Center for Mental Health Law 1090 Vermont Avenue, NW, Suite 220 Washington, DC 20005 202-467-5730 http://www.bazelon.org Email: communications@bazelon.org *Our work in education is mostly based around protecting the rights of students in public schools under the ADA (Americans with Disabilities Act) and IDEA (Individuals with Disabilities Education Act).	The Center for Self-Determination 35425 Michigan Ave.W. Wayne, MI 48184 (734) 722-7092 (734) 467-7639 (Fax) http://www.self-determination.com Email: bnagi@comlivserv.com *The Center for Self-Determination is a non-profit organization, established in 2000, operating as the primary clearinghouse, training and technical assistance source on Self-Determination in the United States and other countries. The Center is devoted to working within the public and private sector to move power and authority over resources directly to individuals with disabilities, families and allies.
Agencies/Assistance Programs - Government
American Indian and Alaska Native Benefits dot com https://www.benefits.gov/categories/American%20... * A lengthy list of special needs and education benefit programs and services available for Native American and Alaska Natives. Click on the appropriate link for more information.	GovBenefits.Gov http://www.Benefits.gov Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Kids' Waivers/Medicaid Waiver Programs http://www.kidswaivers.org Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.	Medicaid Waiver dot Org Disability Services & Waivers all 50 States http://medicaidwaiver.org *A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Tennessee Council on Developmental Disabilities 500 Deadrick St. 15th Floor Nashville, TN 37243 (615) 532-6615 TTY (615) 741-4562 (615) 532-9412 (Fax) http://www.state.tn.us/cdd	Tennessee Department of Human Resources 1000 2nd Avenue, North Nashville, TN 37202 (615) 532-4000 http://www.tennessee.gov/humanserv/
Tennessee Dept. of Health Children's Special Services 425 5th Avenue North Nashville, TN 37247-4750 (615) 340-5697 http://www.nashville.gov/Health-Department/Clin... *Children's Special Services (CSS) is a statewide program offered through the Tennessee Department of Health, that serves children birth to age 21 years, with chronic illnesses or disability needs.	US Department of Indian Health Services 801 Thompson Avenue, Ste. 400 Rockville, MD 20852-1627 (See Contact Listing) http://www.ihs.gov * Complete program and regional office listings for IHS Services
Agencies/Assistance Programs - Private
ABILITY Corps https://abilitycorps.org *Our purpose is to create a world of inclusion and awareness for people with disabilities � through art, media, housing, employment, and volunteer opportunities.	Good Rx online Santa Monica, CA https://www.goodrx.com Email: ada@goodrx.com *An online savings program. GoodRx gathers current prices and discounts to help you find the lowest cost pharmacy for your prescriptions. GoodRx is 100% free. No personal information required.
Kiwanis International 3636 Woodview Trace Indianapolis, IN 46268-3196 1-800-549-2647 Cell 1-317-875-8755 http://www.kiwanis.org *Service is at the heart of every Kiwanis club, no matter where in the world it�s located. Members stage nearly 150,000 service projects and raise nearly US$100 million every year for communities, families and projects. By working together, members achieve what one person cannot accomplish alone. Click on Clubs to find a community club near you.	National School Foundation Association 509 Aurora Ave, Ste 406 Naperville, IL 60540 (866) 824-8513 http://www.schoolfoundations.org * Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state. Click on Foundations at the top of the page.
Single Mothers Grants dot Org http://helpwithpayingbills.org *Lists of companies and organizations that will help individuals pay the essentials of basic needs, such as rent or energy bills. Click on your state and review the list of companies and agencies available.	The Ability Experience PO Box 241368 Charlotte, NC 28224 (980) 318-5385 (704) 504-2400 ext. 5385 (980) 318-5296 (Fax) http://www.abilityexperience.org E-mail: chapterservices@abiltyexperience.org *Members of Pi Kappa Phi support their local communities through the construction of wheelchair ramps for families and individuals that would not otherwise be able to afford it.If you are an individual or family in need of a wheelchair ramp or know of someone who is in need of one to help provide better access to your home, we will gladly get a local chapter organized to assist with the construction.
UnitedHealthcare Children's Foundation PO Box 41 Minneapolis, MN 55440-0041 1-855-698-4223 http://www.uhccf.org *UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. The Foundation aims to fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for.
Army National Guard/Reserve
The National Guard Family Program https://www.jointservicessupport.org/fp/ *Click on Contacts & Resources to find your state program.
Assistive Technologies
Ablenet 2625 Patton Road Roseville, MN 55113 800-322-0956 http://www.ablenetinc.com E-mail: customerservice@ablenetinc.com *Creating assistive technology products that transform lives in simple, tangible, and powerful ways. We believe that all people deserve the tools to help them learn about, interact with, and participate in the world around them. Whether that's a child in the classroom, an adult recovering from an injury, a veteran with a permanent disability, or a senior who wants to remain at home, AbleNet is there to provide an "easy tech, easy value" approach to helping people improve their lives.	Cerner Charitable Foundation 2800 Rockcreek Parkway Kansas City, MO 64117 816-201-1569 https://www.cernercharitablefoundation.org E-mail: cernercharitablefoundation@cerner.com Case Grants Questions Email:casegrants@cerner.com *A funding resource for Assistive Technology. Cerner Charitable Foundation provides funding for children whose families cannot afford medical care, equipment, vehicle modifications, or displacement related to care. Review the assistance criteria and financial guidelines to determine if your child qualifies for funding.
National Library Service for the Blind and Physically Handicapped (NLS) 1291 Taylor Street, NW Washington, DC 20011 (202) 707-5100 TDD: (202) 707-0744 (202) 707-0712 (Fax) http://www.loc.gov/nls E-mail/General Info: nls@loc.gov *Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.	Section 508.gov (IT Accessibility & Workforce Division (ITAW)) Office of Government wide Policy 1800 F Street NW, Room G211 Washington, DC 20405 (Help) 202-208-7420 202-501-2010 (TTY) 202-501-6269 (Fax) http://www.section508.gov/ GSA�s IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. ITAW is the government's principal advocate and coordinator for Section 508 implementation that requires agencies to make information technology accessible for people with disabilities.
Tennessee Technology Access Program (TTAP) 505 Deaderick Street, James K. Polk State Office Building, 15th Floor Nashville, TN 37243-1403 615-313-5183 1-800-732-5059 https://www.tn.gov/humanservices/ds/ttap.html Email: TN.TTAP@tn.gov *Each of TTAP�s core programs is uniquely designed to both maximize limited resources and improve the understanding of, and to gain better access to, assistive technology devices and services.	United States Access Board 1331 F Street NW, Suite 1000 Washington, DC 20004-1111 (800) 872-2253 (800) 993-2822 (TTY) (202) 272-0081 (Fax) https://www.access-board.gov *The U.S. Access Board is a federal agency that promotes equality for people with disabilities through leadership in accessible design and the development of accessibility guidelines and standards for the built environment, transportation, communication, medical diagnostic equipment, and information technology.
Charities and Foundations
Autism Care Today 18685 Main Street, #101-375 Huntington Beach, CA 92648 818-340-4010 https://www.act-today.org Email: info@act-today.org *Autism Care Today provides funding assistance to families throughout the United States on a quarterly basis. These grants are designed to provide access to individuals and families affected by Autism Spectrum Disorders. Since 2005, Autism Care Today has helped more than 1,562 families and provided more than $1.85 million in grants.	Cerner Charitable Foundation 2800 Rockcreek Parkway Kansa City, MO 64117 816-201-1569 https://www.cernercharitablefoundation.org E-mail: cernercharitablefoundation@cerner.com Case Grants Questions Email:casegrants@cerner.com *A funding resource for Assistive Technology. Cerner Charitable Foundation provides funding for children whose families cannot afford medical care, equipment, vehicle modifications, or displacement related to care. Review the assistance criteria and financial guidelines to determine if your child qualifies for funding.
Christopher & Dana Reeve Foundation 636 Morris Turnpike, Suite 3A Short Hills, NJ 07078 1-800-225-0292 http://www.christopherreeve.org *Spinal Cord injuries and paralysis. Specific military treatment program available.	Food Pantries dot Org http://www.foodpantries.org *A state-by-state directory of Food Banks, Soup Kitchens, and non-profit organizations committed to fighting hunger.
iTaalk Foundation (Interactive Technology Assisting Autistic Little Kids) 105 Lawrence Ave., Suite 101 Toledo, OH 43606 567-377-5710 https://www.itaalk.org Email: info@itaalk.org *iTaalk offers grants as financial resources become available. However, we are constantly searching for resources, grants, and other funding sources for our families. View our Grants & Funding page to search our grant resource list or to see if we are currently in a giving cycle.	Jordan Thomas Foundation P.O. Box 22764 Chattanooga, TN 37422 (423) 622-9006 http://www.jordanthomasfoundation.org *Assists children with the need for prosthetics.
Lions Clubs International 300 W. 22nd Street Oak Brook, IL 60523-8842 http://www.lionsclubs.org/EN/index.php *A national service organization with clubs in all 50 states. Eye glasses, ramp programs, other services which vary by location. Click on their Club Locator to find a club near you.	Stuttering Foundation of America 3100 Walnut Grove Road, Suite 603 Memphis, TN 38111-0749 Hot-line:(800) 992-9392 (901) 452-7343 (901) 452-3931 (Fax) http://www.stuttersfa.org/ Email: info@stutteringhelp.org.
United Way 701 N. Fairfax St. Alexandria, VA 22314 https://www.unitedway.org *National Office. Non-profit charitable organization offering a variety of services including camps, respite, grants, home modification assistance, etc. Find your local chapter here.
Child Care Resource Listings
Family Caregiver Alliance 785 Market Street, Suite 750 San Francisco, CA 94103 (800) 445-8106 (415) 434-3388 http://www.caregiver.org E-mail: info@caregiver.org *Check out the Family Care Navigator for services in your state. http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083	Child Care Aware 3101 Wilson Blvd. Suite 350 Arlington, VA 22201 1-800-424-2246 TTY:1-866-278-9428 (703) 341-4101 (Fax) http://www.childcareaware.org Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
First Steps, Inc. 1900 Graybar Lane Nashville, TN 37215 (615) 690-3091 http://www.firststepsnashville.org E-mail: info@firststepsnashville.org *The First Steps Childcare Center is specifically designed to encourage any child to achieve his or her full potential. Our students include those with special needs, medical conditions, developmental delays typically developing children.	National Respite Locator Service 800 Easttowne Drive, Suite 105 Chapel Hill, NC 27514 (800) 473-1727 ext. 222 http://archrespite.org List of Respite provider links nationwide. Focuses on respite care for families of special needs children.
Disability Specific Organizations
Allergy & Asthma Network 8229 Boone Boulevard, Suite 260 Vienna, VA 22182 800-878-4403 703-288-5271 (Fax) https://www.allergyasthmanetwork.org/patients/ From diagnosis to control, Allergy & Asthma Network is a one-stop source for information on asthma and allergies.	American Academy of Child and Adolescent Psychiatry/Autism Resource Center 3615 Wisconsin Avenue, N.W. Washington, DC 20016-3007 1-202-966-7300 1-202-464-0131 (Fax) https://www.aacap.org/AACAP/Families_and_Youth/... * Provides mental health information for a wide variety of mental health topics, including Autism.
American Diabetes Association 1701 North Beauregard Street Alexandria, VA 22311 (1-800-342-2383). http://www.diabetes.org Email: AskADA@diabetes.org. *See registry for local chapter near you.	American Speech-Language-Hearing Association 2200 Research Boulevard Rockville, MD 20850-3289 800-638-8255 TTY:301-296-5650 301-296-8580 (Fax) https://www.asha.org/ *The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 211,000 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.
Amputee Coalition 900 East Hill Avenue, Suite 205 Knoxville, TN 37915-2566 888-267-5669 TTY:865-525-4512 http://www.amputee-coalition.org	Apraxia Kids 1501 Reedsdale Street, Suite 202 Pittsburgh, PA 15233 412-785-7072 https://www.apraxia-kids.org Email: info@apraxia-kids.org *Childhood apraxia of speech (CAS) is a motor speech disorder that makes it difficult for children to speak. Children with the diagnosis of apraxia of speech generally have a good understanding of language and know what they want to say. However, they have difficulty learning or carrying out the complex sequenced movements that are necessary for intelligible speech.
Autism Program at Yale (Yale Child Study Center) 230 South Frontage Rd. New Haven, CT 06519 (203) 785-3420 (203) 764-4373 (Fax) https://medicine.yale.edu/childstudy/services/a... E-mail: betty.litto@yale.edu Clinical and research activities are located in the Child Study Center at Yale University, School of Medicine in New Haven, Connecticut.	Autism Speaks 5455 Wilshire Boulevard, Suite 2250 Los Angeles, CA 90036 (323) 549-0500 (323) 549-0547 (Fax) http://www.autismspeaks.org E-Mail: contactus@autismspeaks.org *For an Autism Speaks office in your area visit our Community Pages.
Bohring-Opitz Syndrome Foundation, Inc. 1703 Nw 42 Pl Gainesville, FL 32605 http://bohring-opitz.org E-mail bohringopitz@gmail.com *Bohring-Opitz Syndrome Foundation, Inc. is dedicated to improving the lives of people affected by BOS through the establishment of a Medical Advisory Board, awareness initiatives, and parent/patient advocacy.	Center for Autism and Related Disabilities, University of Florida, Gainesville 2124 NE Waldo Road, Suite 3200 Gainesville, FL 32609 1 (800) 928-8476 (352) 273-0581 (352) 846-3703 (Fax) http://card.ufl.edu Email: card-info@ufl.edu *The Center for Autism and Related Disabilities (CARD) provides support and assistance with the goal of optimizing the potential of people with autism and related disabilities.
Chattanooga Autism Center 1400 McCallie Avenue, Suite 100 Chattanooga, TN 37404 (423) 531-6961 (opt. 2) http://www.chattanoogaautismcenter.org E-mail: info@chattanoogaautismcenter.org *A parent/advocate-driven center providing lifespan support and services for people with autism spectrum disorders and for their families. The center also serves as an advocacy resource and builds awareness about autism in the region.	Children With Diabetes 5689 Chancery Place Hamilton, OH 45011 http://www.childrenwithdiabetes.com *Diabetes education and information
Dravet Syndrome Foundation, Inc. PO Box 16536 West Haven, CT 06516 203-392-1950 203-907-1940 (Fax) http://www.dravetfoundation.org E-mail:info@dravetfoundation.org Parent and professional organization promotes research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.	Dup15q Alliance P.O. Box 674 Fayetteville, NY 13066 855-387-1572 http://www.dup15q.org Email: info@dup15q.org *See web site for Dup15q clinics in the US.
Epilepsy Foundation of America 8301 Professional Place Landover, MD 20785 (800) 332-1000 http://www.epilepsyfoundation.org/	Five P Minus Society (Cru-du-chat) 1-888-970-0777 http://www.fivepminus.org *To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.Call for referral to the Family Support Coordinator covering your area.
International Dyslexia Association 40 York Rd., 4th Floor Baltimore, MD 21204-5202 (800) 222-3123 (410) 296-0232 https://dyslexiaida.org Email: info@dyslexiaida.org	Learning Disabilities Association of America 461 Cochran Road, Suite 245 Pittsburgh, PA 15234 (412) 341-1515 (412) 344-0224 (Fax) https://ldaamerica.org *Since 1963, LDA has provided support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.See menu for chapter listings by state.
Muscular Dystrophy Association-USA 3300 E. Sunrise Drive Tucson, AZ 85718 1-800-572-1717 http://www.mda.org * Click on Find Your Local MDA Office to locate an office and clinic near you.	National Center for Learning Disabilities (NCLD) 381 Park Avenue South Suite 1401 New York, NY 10016 (888) 575-7373 (212) 545-7510 (212) 545-9665 (Fax) http://www.ncld.org
National Consortium On Deaf-Blindness 345 N. Monmouth Ave. Monmouth, OR 97361 800-438-9376 800-854-7013(TTY) 503-838-8150 (Fax) http://www.nationaldb.org E-mail: info@nationaldb.org	National Craniofacial Association P.O.Box. 11082 Chattanooga, TN 37401 1-800-332-2373 http://www.faces-cranio.org/ Email: faces@faces-cranio.org
National Family Association For Deaf-Blind 141 Middle Neck Road Sands Point, NY 11050 800-255-0411 516-883-9060 (Fax) http://nfadb.org email: NFADB@aol.com *National State-by-State listing	National Institute on Developmental Delays 1900 West MacArthur Shawnee, OK 75801 (405) 878-5301 (405) 878-5114 (Fax) http://nidd.us *Large number of programs, services and information sources available.
Sesame Street and Autism:See Amazing in All Children http://autism.sesamestreet.org *Aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities.A terrific Autism Resource page for parents and everybody else.	The Temple University Collaborative on Community Inclusion 1700 N. Broad Street, Suite 313 Philadelphia, PA 19122 215-204-6779 http://tucollaborative.org E-mail: tucollab@temple.edu *We provide evidence-based resources that consumers, agencies, and policy makers can use to increase community participation across varied life domains.
United Cerebral Palsy (UCP) 1660 L Street, NW, Suite 700 Washington, DC 20036 (800) 872-5827 TTY (202) 973-7197 (202) 776-0414 (Fax) http://www.ucp.org *Excellent state-by-state resource guide. E-mail your local chapter for more information.	Williams Syndrome Changing Lives Foundation 727-557-7177 https://globalgenes.org/raredaily/williams-synd... E-mail: info@wschanginglives.org The Williams Syndrome Changing Lives Foundation is a non-profit organization centered on increasing awareness, increasing education for families, the community, physicians and therapists. We provide needed financial assistance with medical, therapeutic, recreational and other developmental resources.
Early Intervention
Early Childhood Technical Assistance Center (ECTA Center) 517 South Greensboro Street Carrboro, NC 27510 (919) 962-2001 TDD (919) 843-3269 (919) 966-7463 (Fax) http://ectacenter.org E-mail: nectac@unc.edu NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families.	First Steps, Inc. 1900 Graybar Lane Nashville, TN 37215 (615) 690-3091 http://www.firststepsnashville.org E-mail: info@firststepsnashville.org *First Steps operates a Child Development Center providing early intervention, therapy and educational services for children with special needs and medical conditions, who have developmental delays, who are medically fragile and who are typically developing.
National Association for the Education of Young Children 1313 L. Street, NW, Suite 500 Washington, DC 20005 (800) 424-2460 (202) 232-8777 (202) 328-1846 (Fax) http://www.naeyc.org	Office of Head Start-US Administration for Children & Families 370 L'Enfants Promenade, SW Washington, DC 20447 http://www.acf.hhs.gov/programs/ohs Provides a State by State program finder.
Programs for Children with Disabilities: Ages 3 through 5 710 James Robertson Parkway, 7th Floor Nashville, TN 37243-0375 (888) 212-3162 (615) 253-5032 (615) 532-4989 (Fax) http://www.state.tn.us/education/prek/	Southern Early Childhood Association P.O. Box 55930 Little Rock, AR 5930 (800) 305-7322 (501) 227-5297 (Fax) http://www.southernearlychildhood.org/ *Contacts listed by state.
Tennessee's Early Intervention System (TEIS) Ages Birth through 2 710 James Robertson Parkway, 7th Floor Nashville, TN 37243-0375 (800) 852-7157 (615) 741-3537 http://www.state.tn.us/education/speced/TEIS	Zero To Three 1255 23rd Street, NW, Suite 350 Washington, DC 20037 (202) 638-1144 (202) 638-0851 (Fax) http://www.zerotothree.org *ZERO TO THREE is a national nonprofit organization that provides parents, professionals and policymakers the knowledge and the know-how to nurture early development.
Education
Education Resources Information Center 655 15th Street, NW Suite 500 Washington, DC 20005 (800) 538-3742 https://ies.ed.gov/ncee/projects/eric.asp *Large clearinghouse of information.	IDEA 2004/U.S. Department of Education https://sites.ed.gov/idea *Updated IDEA Act information for all age groups.
National Center on Accessible Instructional Materials at CAST, Inc. 40 Harvard Mills Square, Suite 3 Wakefield, MA 01880 (781) 245-2212 http://aem.cast.org *Provides a wide variety of information and resources, including training events Nationwide, regarding Accessible Instructional Materials. A state-by-state listing of programs and services is also available from the home page.	PAVE: Partnerships for Action, Voices for Empowerment 6316 So. 12th St. Tacoma, WA 98465 (253) 565-2266 1-800-5-PARENT (253) 566-8052 (Fax) https://wapave.org Email: pave@wapave.org *Enhanced knowledge of parents/caregivers, families and individuals with disabilities/special needs. Tools, information and resources for you, as a parent/care-giver of a child with disabilities and/or special health care needs and for youth, with and without disabilities. Increased self-reliance of parents/caregivers, families and individuals with disabilities/special needs
Speech Therapy Ideas and Speech Therapy Activities http://www.speechtherapyideas.com *Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.	Tennessee Department of Education: Special Education 7th Floor - Andrew Johnson Tower 710 James Robertson Parkway Nashville, TN 37243-0380 (888) 212-3162 (615) 741-2851 (615) 532-9412 (Fax) http://www.state.tn.us/education/speced/
The Council for Exceptional Children 2900 Crystal Drive, Suite 1000 Arlington, VA 22202 (888) 232-7733 TTY: (866) 915-5000 (703) 264-9494 (Fax) http://www.cec.sped.org *The Council for Exceptional Children is an international community of professionals who are the voice and vision of special and gifted education. CEC's mission is to improve, through excellence and advocacy, the education and quality of life for children and youth with exceptionalities and to enhance engagement of their families.	Think Inclusion http://www.thinkinclusive.us E-mail: timvillegas@thinkinclusive.us * An informational blog with wide ranging information and experience in educational inclusion. A Recommended Read.
U.S. Department of Education//My Child's Special Needs 400 Maryland Avenue, SW Washington, DC 20202 1-800-872-5327 http://www2.ed.gov/parents/needs/speced/edpicks... *Contains a large data base of information regarding programs, legislation, resources, parent helps, etc.
Employment
National Collaborative on Workforce and Disability (NCWD) 4301 Connecticut Avenue, NW, Suite 100 Washington, DC 20008-2304 877-871-0744 TTY: 877-871-0665 http://www.http://www.ncwd-youth.info *Making the connection between Youth with Disabilities and employment. Check out their Blog.	The Employer Assistance and Resource Network on Disability Inclusion (EARN) https://www.askearn.org Email: askearn@viscardicenter.org *A free resource that helps employers tap the benefits of disability diversity. We educate public- and private-sector organizations on ways to build inclusive workplace cultures, and we empower them to become leaders in the employment and advancement of people with disabilities.
What Can You Do? The Campaign for Disability Employment https://www.whatcanyoudocampaign.org E-mail: info@whatcanyoudocampaign.org *Every day, people with disabilities can and do make important contributions to America�s businesses. They have the drive to succeed in employment, and the skills and talent they need to deliver value and results for their employers.These are messages that bear repeating far and wide. And that�s what the Campaign for Disability Employment (CDE) is all about.	Your Ticket To Work 1-866-968-7842 https://www.ssa.gov/work/ *Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program.
Equipment
East Tennessee Technology Access Center 116 Childress Street Knoxville, TN 37920 (865) 219-0130 (865) 219-0137 (Fax) http://www.ettac.org Email: ettacmain@gmail.com *To connect people with disabilities in East Tennessee to the adaptive technology tools and services they need to live with maximum independence and dignity.
Housing Programs - Government
Paralyzed Veterans of America 801 18th Street NW Washington, DC 20006-3517 1-800-424-8200 http://www.pva.org Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! *SNRP recommends their publication "Accessible Home Design".	Public Housing Authorities Directors Association/Local Housing Authority Sites https://www.phada.org *Site lists for city/community Housing Authorities (listed by state).
Tennessee Housing Development Agency 404 James Robertson Parkway, Suite 1200 Nashville, TN 37243-0900 615-815-2200 http://www.thda.org
Housing Programs - Private
Center For Universal Design North Carolina State University P.O. Box 8613 Raleigh, NC 27695-8613 (800) 647-6777 V/TTY:(919) 515-3082 (919) 515-3023 (Fax) http://www.ncsu.edu/ncsu/design/cud/index.htm *Please check the publications listings for detailed information.	EasyLiving Home� 770-270-1611 http://www.easylivinghome.org Email: BBonham@easylivinghome.org. *EasyLiving Home� is the nation�s first voluntary certification program for visitable homes. By providing a few basic criteria in everyday construction, homebuilders and remodelers can add convenience and functionality.
Habitat for Humanity 121 Habitat Street Americus, GA 31709-3498 1-800-422-4828 1-229-924-6935 http://www.habitat.org *For information on eligibility,locations, projects and supported communities in your state click on "Contact Us" and then search for location.	Habitat for Humanity/United States 121 Habitat Street Americus, GA 31709 1-800-422-4828 https://www.habitat.org/where-we-build E-mail: publicinfo@habitat.org *Find local programs in your community.
IDEA - Center for Inclusive Design and Environmental Access University at Buffalo \| School of Architecture and Planning 3435 Main St., 309 Hayes Hall Buffalo, NY 14214-3087 (716) 829-5902 (716) 829-3861 (Fax) http://idea.ap.buffalo.edu E-mail: ap-idea@buffalo.edu *The IDEA Center is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population. The IDEA Center's activities are based on the philosophy of Inclusive Design, often called Universal Design or Design for All.It is a way of thinking that can be applied in any design activity, business practice, program or service involving interaction of people with the physical, social or virtual worlds.	Institute for Human Centered Design (Adaptive Environments) 180-200 Portland Street, Suite 1 Boston, MA 02114 (617) 695-1225 (617) 482-8099 (Fax) http://humancentereddesign.org E-mail: info@HumanCenteredDesign.org
Ramps dot Org ~Free Ramp Program list (877)312-6989 http://www.ramps.org/free-ramps.htm E-mail: questions@ramps.org *Ramps.org is here to help you decide what type of wheelchair ramp is right for your specific situation. Need assistance programs? Click on FREE RAMP PROGRAMS at the bottom of the left-hand menu for a listing of programs in your state.	Rebuilding Together/National Headquarters 1536 16th Street, N.W. Washington, DC 20036 1-800-473-4229 http://www.rebuildingtogether.org *Currently has 225 affiliates, nationwide. Click on "Affiliates" for the Affiliate office nearest you.
The Home Wheelchair Ramp Project http://www.klownwerkz.com/ramp/default.htm E-mail:homeramps@gmail.com *A comprehensive informational site regarding ramp building and the programs that can help you build one. For FUNDING information (and programs to contact for assistance) scroll to the bottom of the page and click on "Funding".	The National Resource Center on Home Modification UC Davis 3715 McClintock Avenue Los Angeles, CA 90089 (213) 740-1364 (213) 740-7069 (Fax) https://homemods.org *Contains a State-by-state resource registry of home modification resources. Go to the Links List under their Resources section and the National Directory for state information.
Universal Design dot Com http://www.universaldesign.com *An excellent resource site for information and resources regarding Universal Design.	Visitability dot Org- National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC 20036 (877) 525-3400 TTY (202) 207-0340 (202) 207-0341 (Fax) https://visitability.org *Visitability is a growing trend nationwide. The term refers to single-family or owner-occupied housing designed in such a way that it can be lived in or visited by people who have trouble with steps or who use wheelchairs or walkers.
Independent Living Organizations
Memphis Center for Independent Living 1633 Madison Ave. Memphis, TN 38104 (901) 726-6404 TTY/TDD: (901) 726-6404 (901) 726-6521 (Fax) http://www.mcil.org	Center for Independent Living of Middle Tennessee 480 Craighead Street, Suite 200 Nashville, TN 37204 (615) 292-5803 TTY/TDD: (615) 292-7790 (615) 383-1176 (Fax) http://www.cilmtn.org *5 Regional offices in Tennessee
Independent Living Research Utilization Project/The Institute for Rehabilitation and Research 2323 So. Sheppard, Suite 1000 Houston, TX 77019 (713) 520-0232 TTY: (713) 520-5136 http://www.ilru.org/projects/cil-net/cil-center... email: ilru@ilru.org Contact information for Statewide Independent Living Councils listed by state.
Indian Health Services
Nashville Area Office Indian Health Services 711 Stewarts Ferry Pike Nashville, TN 37214-2634 (615) 467-1500 (615) 467-1501 (Fax) https://www.ihs.gov/nashville *Covers the Southern and Eastern United States.	National Council of Urban Indian Health 924 Pennsylvania Ave., SE Washington , DC 20003 202-544-0344 http://www.ncuih.org
US Department of Indian Health Services 801 Thompson Avenue, Ste. 400 Rockville, MD 20852-1627 (See Contact Listing) http://www.ihs.gov * Complete program and regional office listings for IHS Services
Information
Abilities dot Com https://www.abilities.com Email: info@abilities.com *Covers a broad spectrum of disability information for children and adults.	ABLE National Resource Center 1667 K Street, NW Suite 480 Washington, DC 20006 1-(202) 683-6094 https://www.ablenrc.org Email: info@ablenrc.org *The ANRC aims to educate individuals with disabilities and their families, state government and legislatures, financial service companies and financial planners and attorneys - who focus on trust and estate planning - about ABLE�s potential positive impact on the lives of millions of Americans with disabilities.
ADA Document Portal http://adata.org/ada-document-portal *The ADA Web Search Portal is a focused search of important websites that contain information about the ADA. The purpose of the Portal is to connect individuals with high quality information about the Americans with Disabilities Act and to assist individuals in answering ADA questions.	ADA National Network U.S. Department of Justice,950 Pennsylvania Avenue, NW,Disability Rights Section - NYA Washington, DC 20530 1-800-949-4232 800-514-0383 (TTY) http://adata.org *Contact Your Regional Office using the map on the home page. For information and assistance call the information line listed above.
Administration for Community Living 330 C St SW Washington, DC 20201 (202) 401-4634 https://www.acl.gov Email: Requests for information about ACL programs and comments and technical issues related to the ACL website can be sent to: aclinfo@acl.hhs.gov ADD programs are at work in every state and U.S. territory. ADD does not provide direct consumer support or financial assistance. ADD provides funding, monitoring, and policy guidance to it's programs Nationwide. Check the State Program Listing for program information in your state. Eldercare Locator (to find local resources):(800) 677-1116	American Association on Health and Disability 110 N. Washington Street, Suite 328-J Rockville, MD 20850 (301) 545-6140 (301) 545-6144 (Fax) http://www.aahd.us E-mail: contact@aahd.us * A large data base of current studies and information regarding disabilities.
Center for Parent Information and Resources (formerly NICHCY) 35 Halsey St., Fourth Floor Newark, NJ 07102 (973) 642-8100 http://www.parentcenterhub.org *The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.	Child Development Institute 1442 E Lincoln Avenue Suite 121 Orange, CA 92865 https://childdevelopmentinfo.com *The �go to� site for parents for information, products and services related to child development, psychology, health, parenting, learning, media, entertainment, family activities as well as to connect with other parents, professional experts organizations and other useful websites. The goal of our website is to promote healthy development to enable children to reach their true potential for a successful and rewarding life.
Complex Child- Online Magazine http://complexchild.org Email: info@complexchild.org *Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.	Disability dot Gov - Information 200 Constitution Ave NW, Washington, DC 20210 1-866-633-7365 https://www.dol.gov/odep/topics/disability.htm *A listing of a wide variety of federal Disability Resources available through the US Dept. of Labor.
Disability History Museum (413)369-4372 (413)369-4784 (Fax) http://www.disabilitymuseum.org E-mail:info@straightaheadpictures.org *The Disability History Museum hosts a Library of virtual artifacts, Education curricula, and Museum exhibits. These programs are designed to foster research and study about the historical experiences of people with disabilities and their communities.	Disability Information.Gov https://webarchive.library.unt.edu/eot2008/2008... This site is archived but still contains a large database of useful links. Please be aware some links may no longer work. Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Disability Resource Center 900 East Hill Ave, Suite 120 Knoxville, TN 37915 (865) 637-3666 (865) 637-5616 (Fax) http://www.drctn.org email:drc@korrnet.org	Enabled Kids (416) 250-1904 http://enabledkids.ca E-mail: natan@enabledkids.ca *"Enabling children to function independently"
Georgia Mental Health Consumer Network, Inc. http://www.gmhcn.org/links.html * An informational/Resource Links site with information regarding many state/private programs. Contains information links for several states.	Girls Health.gov 8270 Willow Oaks Corporate Drive, Suite 301 Fairfax, VA 22031 http://www.girlshealth.gov/ *See "Illness and Disability" tab. Excellent information resource.
Great Lakes ADA Center MC 728 - 1640 W. Roosevelt Road, Room 405 Chicago, IL 60608 312-413-1407 (V/TTY) 877-232-1990 (V/TTY) 312-413-1856 (Fax) http://www.accessibilityonline.org * The ADA National Network provides a comprehensive set of services for up-to-date information, consultation, referrals, resources, and training on the Americans with Disabilities Act for businesses, employers, governmental entities, service providers and individuals with disabilities.	Health Care dot Gov http://www.healthcare.gov/index.html *Provides current and up to date information regarding health care legislation and a state-by-state guide to insurance programs available in every state.
Healthy Children dot Org/American Academy of Pediatrics 345 Park Boulevard Itasca, IL 60143 1-630-626-6000 https://healthychildren.org *Great parent information provided by The American Academy of Pediatrics (AAP) and its member pediatricians who dedicate their efforts and resources to the health, safety and well-being of infants, children, adolescents and young adults.	IMPACT on Health and Wellness (Family Voices) 3701 San Mateo Blvd. NE, Suite 103 Albuquerque, NM 87110 (505) 872-4774 (888) 835-5669 (505) 872-4780 (Fax) http://www.familyvoices.org/projects?id=0001 *IMPACT is a project of national Family Voices. Our goal is to promote a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities.
National Organization on Disability 910 Sixteenth Street, N.W., Suite 600 Washington, DC 20006 (202) 293-5960 TTY: (202) 293-5968 (202) 293-7999 (Fax) https://www.nod.org E-mail: ability@nod.org	Safe Kids Worldwide 1255 23rd Street, NW, Suite 400 Washington, DC 20037 202-662-0600 202-393-2072 (Fax) https://www.safekids.org *Safe Kids Worldwide is a global organization dedicated to preventing injuries in children, the number one killer of kids in the United States.
Tennessee Disability Pathfinder Vanderbuilt Kennedy Family Outreach Center & Clinics 1810 Edgehill Avenue Nashville, TN 37212 (800) 640-4636 (615) 322-8529 http://www.familypathfinder.org email:tnpathfinder@vanderbuilt.edu *Statewide disability information and referral service for all ages.	United Spinal Association 75-20 Astoria Boulevard Jackson Heights, NY 11370 800-404-2898 (718) 803-3782 (718) 803-0414 (Fax) http://www.unitedspinal.org/disability-publicat... *Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
Insurance Assistance Programs
Good Rx dot com 501 Santa Monica Blvd.Suite 403 Santa Monica, CA 90401 1-888-799-2553 http://www.goodrx.com *Comparison shop for over 6000 FDA approved medications at 70,000 pharmacies nationwide. With or without insurance this site can save you money.	Healthcare Dot Gov 200 Independence Avenue, S.W. Washington, DC 20201 http://www.healthcare.gov *Provides a wide variety of current health care information. State-by-State listings will help consumers compare programs and services in their communities.
Insure Kids Now dot gov 1-877-543-7669 http://www.insurekidsnow.gov E-mail: CMSOCHIPRAQuestions@cms.hhs.gov *InsureKidsNow.gov provides information about Medicaid and CHIP services for families who need health insurance coverage. These programs are designed to be affordable for families who are not able to afford health insurance coverage in the private market or do not have coverage available to them. Even if you've been turned down in the past, you may be able to get health coverage for your child now. Learn more about health coverage programs in your state. How to Contact Us: If you have specific questions about health insurance for your children, please contact the programs in your state or make a free call to 1-877-543-7669, our free and confidential hotline, where you'll be connected directly to someone from your state who will help you apply.	Patient Access Network (PAN) Foundation PO Box 221858 Charlotte, NC 28222 1-866-316-7263 1-866-316-7261 (Fax) https://www.panfoundation.org E-mail: contact@panfoundation.org *The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to providing underinsured patients with financial assistance through more than 50 disease-specific funds that provide access to progressive therapies.
Patient Advocate Foundation 421 Butler Farm Road Hampton, VA 23666 (800) 532-5274 (757) 873-8999 (Fax) http://patientadvocate.org *Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
Legal Advocacy/Information
ADA Dot Gov/US Department of Justice Civil RIghts Division 950 Pennsylvania Avenue, NW Civil Rights Division, Disability Rights Section - NYA Washington, DC 20530 800 - 514 - 0301 800 - 514 - 0383 (TTY) http://www.ada.gov *The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line.	American Bar Association http://apps.americanbar.org/legalservices/findl... *Consumer's Guide to Legal Help - Contains a state-by-state listing.
Council of Parent Attorneys and Advocates P.O. Box 6767 Towson, MD 21285 (443) 451-5270 (443) 451-2680 (Fax) http://www.copaa.org *COPAA�s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. Our primary goal is to secure high quality educational services and to promote excellence in advocacy. Has a MILITARY resource Section under "Parents".	Disability Law & Advocacy Center of Tennessee, Inc. 2416 21st Avenue South Nashville, TN 37212 1-800-342-1660 (888) 852-2852 (TTY) (615) 298-2046 (Fax) http://www.dlactn.org Email: GetHelp@DLACTN.org
National Association of Indian Legal Services 300 Third Street, Suite 210 Wausau, WI 54403 1-800-472-1638 (715) 842-1681 (715) 848-1885 (Fax) http://www.judicare.org/Content/National_Indian... E-mail: info@judicare.org *See home page for state by state listing of service centers.	National Help Law Program (NHeLP) North Carolina Office 211 North Columbia Street, 2nd Floor Chapel Hill, NC 27514-3503 (919) 968-6308 (919) 968-8855 (Fax) http://www.healthlaw.org Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Help Law Program (NHeLP) Washington, D.C. Office 1101 14th Street, NW Suite 405 Washington, DC 20005 (202) 289-7661 (202) 289-7724 (Fax) http://www.healthlaw.org Email: nhelpdc@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.	National Resource Center for Supported Decision-Making 202-448-1448 http://www.supporteddecisionmaking.org E-mail: JHJP@dcqualitytrust.org *Information about the Right to Make Choices � the right we all have to make our own decisions and direct our own lives. See state map for your state. Can connect you with people and organizations that may be able to help you, and answer your questions.
The Special Needs Alliance http://www.specialneedsalliance.org *Provides a national list of lawyers specializing in special needs trusts and other resources by state.	Utah State Courts Guardianships and Conservatorships http://www.utcourts.gov/howto/family/gc/ *A large "How To" database full of information required to go through the process for minors and adults. Geared for Utah this site is still useful for other states.
Wright's Law http://www.wrightslaw.com
Legislative
Children's Defense Fund CDF Haley Farm P.O. Box 840 Clinton, TN 37717-0840 (865) 457-6466 http://www.haleyfarm.org
Medical Centers/Hospitals/Clinics
East Tennessee Children's Hospital 2018 Clinch Avenue P.O. Box 15010 Knoxville, TN 37916 (865) 541-8000 (865) 541-8343 (Fax) http://www.etch.com	Le Bonheur Children's Medical Center 50 North Dunlap Street Memphis, TN 38103 (901) 572-3000 http://www.lebonheur.org
Shriner's of North America (International) 2900 Rocky Point Dr. Tampa, FL 33607-1460 (800) 237-5055 http://www.shrinersinternational.org Charitable children's hospitals specializing in burn and orthopedic treatment. Check for the hospital nearest your area.	St. Jude Children's Research Center 332 N. Lauderdale Memphis , TN 38105-2479 (901) 495-3300 http://www.stjude.org email: info@stjude.org
The National Association of Free & Charitable Clinics 1800 Diagonal Road, Suite 600 Alexandria, VA 22314 703-647-7427 866-875-3827 (Fax) http://nafcclinics.org Email: Info@nafcclinics.org * The National Association of Free and Charitable Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,400 Free and Charitable Clinics and the people they serve in the United States.
Medical Information/Research Organizations
American Academy of Pediatrics/Childhood Immunization Support Program 141 Northwest Point Blvd. Elk Grove Village, IL 60007 http://www.cispimmunize.org/ *Information regarding childhood immunizations.	American Association of Pediatrics 141 Northwest Point Blvd. Elk Grove Village, IL 60007 (847) 434-4000 http://www.aap.org General information regarding diagnosis and treatment of pediatric disorders and diseases as well as some referral services.
American Medical Association 515 No. State St. Chicago , IL 60610 (800) 621-8335 http://www.ama-assn.org General information regarding diagnosis,treatment and current research in the medical community.	American Occupational Therapy Association, Inc. 4720 Montgomery Lane Bethesda, MD 20824-1220 (301) 652-2682 TDD: 1-800-377-8555 (301) 652-7711 (Fax) http://www.aota.org/
American Speech-Language-Hearing Association 10801 Rockville Pike Rockville, MD 20852 (800) 638-8255 http://www.asha.org * Has an extensive database of Audiologists and Speech-Language Pathologists. Click on "Find a Professional".	Annette and Irwin Eskind Biomedical Library (at Vanderbilt University) 2209 Garland Avenue Nashville, TN 37232-8340 (615) 936-1410 (615) 936-1384 (Fax) http://www.mc.vanderbilt.edu/biolib/index.html
Birth Defects Research for Children, Inc. 800 Celebration Avenue, Suite 225 Celebration, FL 34747 (407) 566-8304 (407) 566-8341 (Fax) http://www.birthdefects.org/	Columbus Children's Research Institute 700 Children's Drive Columbus, OH 43205 (614) 722-2000 (614) 722-2716 (Fax) http://columbuschildrens.com/GD/Templates/Pages...
Consumer Reports Medical Guide http://www.consumerreports.org/cro/health/index... Medical reports on a wide variety of topics. *ALWAYS consider the source when reviewing medical information	FDA New Pediatric Labeling Information Database 10903 New Hampshire Avenue Silver Springs, MD 20993 1-888-463-6332 http://www.accessdata.fda.gov/scripts/sda/sdNav... The Pediatric Labeling Information Database is a one-stop resource. You can search for information by the products commercial or chemical name, or by the condition for which it was studied. FDA's Office of Pediatric Therapeutics (OPT), which focuses on safety, scientific, and ethical issues that arise in pediatric clinical trials or after products are approved for use in children, developed the tool in collaboration with another branch of the agency, the Center for Drug Evaluation and Research.
National Network of Libraries of Medicine (NNLM) 8600 Rockville Pike,Bldg. 38, Room B1-E03 Bethesda, MD 20894 https://nnlm.gov *The mission of NNLM is to advance the progress of medicine and improve the public health by providing all U.S. health professionals with equal access to biomedical information and improving the public's access to information to enable them to make informed decisions about their health. The Program is coordinated by the National Library of Medicine and carried out through a nationwide network of health science libraries and information centers.	Speech Therapy Ideas and Speech Therapy Activities http://www.speechtherapyideas.com *Provides speech therapy ideas and activities developed by a licensed Speech Language Pathologist for parents and professionals.
Vanderbilt University Clinical Research Center 1161 21st Avenue South, AA-3208 MCN Nashville, TN 37232-2195 615-322-6972 615-343-2979 (Fax) http://www.mc.vanderbilt.edu/gcrc/
Military Family Support Organizations
Armed Services YMCA 14040 Central Loop, Suite B Woodbridge, VA 22193 800-597-1260 703-730-5120 (Fax) https://www.asymca.org The ASYMCA is an association of the YMCA, specifically dedicated to serving junior-enlisted military service members and their families of all five armed services: Army, Marine Corps, Navy, Air Force and Coast Guard. The oldest military support organization in the U.S., serving 93 military installations nationwide. Our national and locally tailored programs and services for our nation�s troops and their families are offered at no or low cost and require no dues or membership fees.	Child Care Aware - Military Programs 3101 Wilson Blvd. Suite 350 Arlington, VA 22201 1-800-424-2246 TTY:1-866-278-9428 (703) 341-4101 (Fax) http://usa.childcareaware.org Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
Military Quick Links (National Guard, Reserve, Active Duty)
ABA Military Pro Bono Project 321 N. Clark St. Chicago, IL 60654 312-988-5783 http://www.militaryprobono.org *The ABA Military Pro Bono Project accepts case referrals from military attorneys on behalf of junior-enlisted, active-duty military personnel and their families with civil legal problems, and it places these cases with pro bono attorneys where the legal assistance is needed. The Project is also the platform for Operation Stand-By, through which military attorneys may seek attorney-to-attorney advice to further assist their service member clients.	American Bar Association/Military Lawyers http://www.americanbar.org/portals/military_law... *Scroll down the home page to the very bottom for Military and Veteran Bar Association listings.
DoD Forms Management Program http://www.esd.whs.mil/Directives/forms/dd0001_... *Find Dependency Determination Forms here. Scroll down to the DD 137-5 Dependency Statement - Incapacitated Child Over Age 21 and click on the form number. This form can be filled out on line.	Easter Seals National Headquarters 230 W. Monroe St., Suite 1800 Chicago, IL 60606 (800) 221-6827 TTY 312-726-4258 (312) 726-1494 (Fax) http://www.easterseals.com *Contact for the chapter closest to you. Ask your local chapter for camps, grants, respite services and other services available in your area.
EFMP & Me: Exceptional Family Member Program (EFMP) https://efmpandme.militaryonesource.mil *Use this tool to maneuver through the Defense Department's network of services and supports for families with special needs. No sign-up is required for service members and family members, but you can choose to create an account to save your progress and preferences.	Exceptional Family Member Program/All Branches/Mobile https://www.militaryonesource.mil/family-relati... Contains contact information, Base program locators and enrollment/justification forms for ALL Branches of service.
Kids' Waivers/Medicaid Waiver Programs http://www.kidswaivers.org Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project State-by-State is intended to simplify the process as much as possible.	Medicaid Waiver dot Org http://medicaidwaiver.org *A state-by-state Medicaid Waiver program listing. Please note: Medicaid programs do not transfer. If you're planning a move you'll want to do some homework. Start here then go to the official page of the state you are considering.
Military One Source 800-342-9647 https://www.militaryonesource.mil/special-needs/ * A DoD supported site. Military OneSource has policy and programmatic information, helpful resources, products, articles and tips on numerous topics related to military life. Confidential services are available 24 hours a day by telephone and online. In addition to the website support, Military OneSource offers confidential call center and online support for consultations on a number of issues such as spouse education and career opportunities, issues specific to families with a member with special needs, health coaching, financial support, and resources.	Military Parent Technical Assistance Center 6316 S 12th St Tacoma, WA 98465 (253) 565-2266 (800) 572-7368 https://branchta.org E-mail: thebranch@wapave.org * Provides Base EFMP and Special Needs contact information for all regions, all branches of service.
National Military Family Association 3601 Eisenhower Avenue, Suite 425 Alexandria, VA 22304 http://www.militaryfamily.org E-mail: infor@militaryfamily.org *Click on Info & Resources links for EFMP=Special Needs information.	Social Security Administration Information for Parents National Info. 1-800-772-1213 http://www.ssa.gov/pgm/links_ssi.htm *Benefits information and local office addresses with contact information available by state and city.
State & Local Government on the Net http://statelocalgov.net/50states-military-vete... *State listings for Military and Veterans sites within the 50 United States.	Tennessee Department of Human Resources 1000 2nd Avenue, North Nashville, TN 37202 (615) 532-4000 http://www.tennessee.gov/humanserv
The National Guard Family Program https://www.jointservicessupport.org/fp/ *Click on Contacts & Resources to find your state program.	The National Resource Directory http://www.nationalresourcedirectory.gov The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
The Special Needs Alliance http://www.specialneedsalliance.org *Provides a national list of lawyers specializing in special needs trusts and other resources by state. Check here for help with Guardianship, incapacitation, trusts and other pertinent topics.	United Cerebral Palsy (UCP) 1660 L Street, NW, Suite 700 Washington, DC 20036 (800) 872-5827 TTY (202) 973-7197 (202) 776-0414 (Fax) http://www.ucp.org *Contact for your local chapter. Excellent state-by-state resource guide.
United Way 701 N. Fairfax St. Alexandria, VA 22314 https://www.unitedway.org/local/united-states *Non-profit charitable organization offering a variety of services including camps, respite, grants, etc. Find your local chapter here.
Other
Disability Studies, Temple University Blog http://disstud.blogspot.com *Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
Parent Support Programs
A Mother's Rest Charitable Respite Foundation P.O. Box 131 Monrovia, MD 21770 https://www.amothersrest.org Email: innkeeper@amothersrest.org *Non-profit AMR coordinates affordable, 3-night respite retreats with our national network of bed and breakfast inn partners. Proactive health initiative. Exclusively for parents and caregivers of children or adults with ANY extra need. Serving bio & adoptive parents. Moms, Dads, Couples, Grandparents, Special Educators, Mommy & Me, Daddy & Me, Families. Funding for child care and summer camp grants, financial planning, employment	Autism Support Network P.O. Box 1525 Fairfield, CT 06824 (203) 404-4929 (203) 404-4969 (Fax) http://www.autismsupportnetwork.com E-mail: info@AutismSupportNetwork.com The mission of Autism Support Network is: connect, guide and unite. Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism � whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. *Use the search engine on the Home Page to find resources in your state areas.
Center for Parent Information and Resources 35 Halsey St., Fourth Floor Newark, NJ 07102 (202) 884-8355 http://www.parentcenterhub.org *Each state has at least one parent center. These should be listed on your state resource links page. If not, click on Parent Centers in the header menu to locate the nearest center to you.	Compassion Fatigue Awareness Project http://compassionfatigue.org The Compassion Fatigue Awareness Project� is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve. E-mail: patricia@compassionfatigue.org
DadsMOVE (Mentoring Others With Voices of Experience) 6315 South 19th Street Tacoma, WA 98466 http://www.dadsmove.org *Dads MOVE serves all parents and the families of children with special needs - mental health, behavioral, or emotional concerns, across Washington State and soon, the nation. We are a family-focused, dads driven peer support model, providing education, support, and advocacy to the families of special needs children. CHECK OUT THEIR BLOG!	Disabled Parenting Project (DPP) http://www.disabledparenting.com *An online organization, the Disabled Parenting Project is on a mission to leverage technology in order to create opportunities for parents and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.
Family Voices 3701 San Mateo Blvd. NE, Suite 103 Albuquerque, NM 87110 (888) 835-5669 (505) 872-4774 (505) 872-4780 (Fax) http://www.familyvoices.org Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. *Click on your state for local chapter information.	Hands and Voices PO Box 3093 Boulder, CO 80307 (866) 422-0422 http://www.handsandvoices.org/index.htm E-mail: parentadvocate@handsandvoices.org *Dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children, nationwide. Click on the Map to find the chapter in your state.
Mommies of Miracles http://www.mommiesofmiracles.com *Mommies of Miracles is a growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities.	Parent Technical Assistance Center Network 35 Halsey St., 4th Floor Newark, NJ 07102 (973) 642-8100 http://www.parentcenterhub.org/rptacs/ *Parent Centers provide training, information and assistance to families of children with all disabilities ages birth to 26 years and the professionals who work with them. Click on the Regional Map to find the program/programs in your state.
Parent to Parent USA (P2PUSA) 2030 M St. NW, Suite 350 Washington, DC 20036 http://www.p2pusa.org/p2pusa/sitepages/p2p-home... E-mail: memberinfo@p2pusa.org *The site is now closed but still has some archived information.	Sesame Street & Autism - Resources for Parents http://autism.sesamestreet.org *Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to manage common challenges, to simplify everyday activities, and to grow connections and support from family, friends, and community.
Sibling Support Project/A Kindering Center Program 6512 23rd Ave NW, #213 Seattle, WA 98117 (206) 297-6368 (509) 752-6789 (Fax) http://www.siblingsupport.org E-mail: info@siblingsupport.org *The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.	STEP - Support & Training for Exceptional Parents 712 Professional Plaza Greenville, TN 37745 (800) 280-STEP (423) 693-0125 (423) 636-8217 (Fax) http://www.tnstep.org
The Caregiver's Space http://www.thecaregiverspace.org *The Caregiver Space is designed to be a free social network, dedicated solely to the welfare of caregivers�: The Invisible Patients. Our goal is to become the premier center for finding resources, sharing experiences, developing personal networks and learning ways to minimize and cope with caregiver stress. Our code is to provide services that transcend disease, age, length of illness and income.	The Temple University Collaborative on Community Inclusion 1700 N. Broad Street, Suite 313 Philadelphia, PA 19122 215-204-6779 http://tucollaborative.org/community-inclusion-... E-mail: abilger@temple.edu *Contains an excellent list of available educational, and other, resources.
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program http://www.givekidsasmile.ada.org/findGKAS.asp *This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.	Merck Patient Assistance Programs P.O. Box 100 Whitehouse Station, NJ 08889-0100 908-423-1000 http://www.merck.com/merckhelps/patientassistance/ Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
National Council on Patient Information and Education 200-A Monroe Street, Suite 212 Rockville, MD 20850 (301) 340-3940 (301) 340-3944 (Fax) http://www.talkaboutrx.org Email: ncpie@ncpie.info	NeedyMeds P.O. Box 219 Gloucester, MA 01931 http://www.needymeds.org NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance 1-888-477-2669 http://www.pparx.org The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.	Partnership for Prescription Assistance Kids 1-877-369-1477 http://kids.pparx.org The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers 1-866-706-2400 http://www.pfizerhelpfulanswers.com Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: �Pfizer medicines for free or at a savings to patients who qualify �Some programs also offer reimbursement support services Call for more information.	RxAssist 111 Brewster Street Pawtucket, RI 02860 401-729-3284 401-729-2955 (Fax) http://www.rxassist.org Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
United States Tennis Association/Wheelchair Tennis 70 West Red Oak Lane White Plains, NY 10604 HQ (914) 696-7000 https://www.usta.com/en/home/play/lots-of-ways-... *Provides regulation and paralympic play information nation wide.Contact for full program information.	Accessible Playground dot Net 1463 Greystone Dr. Pittsburgh, PA 15206 (412) 334-2652 http://www.accessibleplayground.net E-mail: mara@letkidsplay.com *Excellent web based center for information re: Accessible playgrounds. Provides a nationwide state-by-state playground directory and playground resources.
American Amputee Hockey Association and Standing Amputee http://www.usahockey.com/page/show/902518-stand... E-Mail: DisabledHockey@USAHockey.org *The AAHA invites all players with limb loss/ birth defects/ and other disabilities to play upright ice hockey.	American Camp Association 5000 State Road 67 North Martinsville, IN 46151-7902 800-428-2267 765-342-8456 765-342-2065 (Fax) https://www.acacamps.org *24 Regional Offices nationwide. Check listings for camps near you.
American Dance Therapy Association 230 Washington Avenue Extension, Suite 101 Albany, NY 12203-3539 818-340-4010 567-377-5710 (Fax) https://adta.org Email: info@adta.org *Supports chapters and regional study groups throughout the United States. Find your chapter under About, Information, Chapters.	American Music Therapy Association 8455 Colesville Road, Suite 1000 Silver Spring, MD 20910 301-589-3300 301-589-5175 (Fax) https://www.musictherapy.org *The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world.
American Wheelchair Bowling Association P.O. Box 69 Clover, VA 24534 http://www.awba.org E-mail: info@awba.org *The AWBA provides a competitive, challenging, and informative environment for those individuals with disabilities requiring the use of a wheelchair while bowling to participate in bowling events no matter their individual skill level.	Amputee Coalition 900 East Hill Avenue, Suite 205 Knoxville, TN 37915 888-267-5669 http://www.amputee-coalition.org E-Mail: amputee-coalition.org *See for amputee camps listed by state.
Art Shop Therapuetic Art Lessons for Children and Adults with Disabilities 1043 Grand Ave. St. Paul, MN 55105 612-254-5013 http://artshoptherapy.com *ArtShop provides opportunities for children and adults with cognitive, developmental, emotional and physical disabilities to participate in the creative process and develop as artists. Through therapeutic art lessons and projects adapted for individuals with disabilities, ArtShop utilizes the process of creating art to promote and develop self expression and empowerment.	Artistic Realization Technologies, Inc. 11 Whippoorwill Way Belle Meade, NJ 08502 908-359-3098 http://www.artrealization.org E-mail: info@artrealization.org *Created technologies, studio programming, and training that empowers those who lack the articulate use of their hands to gain perfect individual control of the art-making process.
Best Buddies - Global Headquarters 100 Southeast Second Street, Suite 2200 Miami , FL 33131 (800) 892-8339 (305) 374-2233 (305) 374-5305 (Fax) http://www.bestbuddies.org *Currently has 177 chapters across the United States. Contact for a chapter in your area.	C.A.S.T. for Kids Foundation (Western Region) 227 S.W. 41st Street Renton, WA 98057 (425) 251-3214 (425) 251-3272 (Fax) http://www.castforkids.org/ Email:jim@castforkids.org *Contact for a fishing program in your state
CampResource.com/Online Summer Camp Directory http://www.campresource.com *Special needs camps for boys and girls that focus on the challenges of ADHD, Autism, physical disabilities, weight loss, diabetes, and many other special needs that children face. Listed alphabetically. Can search by camp type and state.	Challenge Air 7363 Cedar Springs Road Dallas, TX 75235 (214) 351-3353 1-877-FLY-KIDS http://www.challengeair.com Challenge Air has enriched the lives of children and youth with special needs through its unique aviation programs since 1993. Programs can be set up in various communities that qualify. Contact for details!
Dreams Fulfilled Through Music P.O. Box 40548 San Antonio, TX 78229 210-771-5809 210-247-9681 (Fax) http://dreamsfulfilledthroughmusic.org/index.ph... E-mail: info@dftm.org *National Music Teacher Directory for teachers specializing/also teaching children with special needs. Click on Resources then Teacher Directory.	Easter Seals Camp (ASCCA) P.O. Box 21 Jackson's Gap, AL 36861 1-800-843-2267 (in ALabama) 256-825-9226 http://www.campascca.org/
Easter Seals Tennessee Youth, Adult/Child Respite & Adult Camp 3088 Smith Springs Road Nashville, TN 37013 (615) 251-0994 (615) 251-0994 (Fax) http://tn.easterseals.com/site/PageServer?pagen... E-mail: camp@eastersealstn.com	Freedom's Wings International, Inc. 324 Charles Street, Apt #25 Coopersburg, PA 18036 (800) 382-1197 http://www.freedomswings.org Freedom's Wings International (FWI) is a non-profit organization run by and for people with physical disabilities. We provide the opportunity for those who are physically challenged to fly in specially adapted sailplanes, either as a passenger or as a member of the flight training program.
International Wheelchair Aviators P.O. Box 279 Kemah, TX 77565 281-703-7450 http://wheelchairaviators.org E-mail: IWAviators@aol.com A worldwide group of disabled and able bodied pilots interested in aviation and flying. Members have many different disabilities including paraplegia,quadriplegia, amputee, multiple sclerosis, spina bifida, polio and other problems.	Let Kids Play! 1463 Greystone Dr. Pittsburgh, PA 15206 (412) 334-2652 http://www.letkidsplay.com E-mail: mara@letkidsplay.com *Let Kids Play is a consulting firm that works with manufacturers, communities, non-profits, park districts, retail stores, and parents on projects and strategies that ensure that all children have the best play opportunities possible
Life Rolls On 400 Corporate Pointe, Suite 525 Culver City, CA 90230 866-We Will Walk (Ph) (310) 807-5488 (Fax) http://www.liferollson.org Email: Contact@LifeRollsOn.org *Life Rolls On is a non-profit organization that inspires others to see the boundless possibilities beyond paralysis. Established in 2002, LRO�s signature adaptive surfing program, They Will Surf Again, has grown into a catalyst of hope for thousands of individuals throughout the world.	Morgans� Wonderland (Fully Accessible Theme Park) 5223 David Edwards Drive San Antonio, TX 78233 (210) 495-5888 (877) 495-5888 (toll free) http://www.morganswonderland.com E-mail: info@morganswonderland.com *Provides a safe, clean and beautiful environment free of economic barriers that all individuals, regardless of age, special need or disability, can come to and enjoy.
MySummerCamps.Com 909 Sepulveda Blvd. El Segundo, CA 90245 310-280-4105 877-777-7738 310-280-4921 (Fax) http://www.mysummercamps.com/camps/Special_Need... *Large resource listing of a wide variety of Special Needs summer camps in the US and Canada.	National 4-H Council 7100 Connecticut Ave. Chevy Chase, MD 28015 301-961-2800 https://4-h.org/about/leadership/national-4-h-c... *Click on "Contact Us" to find your local chapter.
National Amputee Golf Association 11 Walnut Hill Rd Amherst, NH 03031 http://nagagolf.org E-mail:info@nagagolf.org See "Related Links" for regional and international organization contact information.	National Center on Accessibility 501 North Morton Street, #109 Bloomington, IL 47404-3732 (812) 856-4422 TTY(812) 856-4421 (812) 856-4480 (Fax) http://www.ncaonline.org *NCA was established through a cooperative agreement between Indiana University and the National Park Service. Over the last two decades, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
National Center on Physical Activity and Disability 1640 W. Roosevelt Road Chicago, IL 60608-6904 1-800-900-8086 1-312-355-4058 (Fax) http://www.ncpad.org/ Email: ncpad@uic.edu. *Maintains a State-by-state listing of Summer Camps and recreational facilities.	National Inclusion Project - Let's ALL Play Resources 800 Park Office Dr Suite 3314 RTP, NC 27709 919-314-5540 919-314-5541 (Fax) https://www.inclusionproject.org/lets-all-play/... Email: contactus@inclusionproject.org *Let�s ALL Play provides training, resources, and partnerships for recreational programs that are currently serving children with special needs and wish to do it better or programs seeking to open doors currently shut to children with special needs in their community. We strive to meet programs where they are.
National Park Service/Accessible Opportunities in National Parks http://www.nps.gov/pub_aff/access/opportunities... *Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.	National Parks InteragencyAmerica the Beautiful Passes http://www.nps.gov/fees_passes.htm *Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
National Sports Center for the Disabled P.O. Box 1290 Winterpark , CO 80482 (970) 726-1540 (303) 316-1540 (970) 726-4112 (Fax) http://www.nscd.org *National Sports Center for the Disabled's mission is to positively impact the lives of people with any physical or mental challenge through quality adaptive recreation programs in over 20 sports.	National Wheelchair Basketball Association 1130 Elkton St., Suite C Colorado Springs, CO 80907 (719) 266-4082 (719) 266-4876 (Fax) http://www.nwba.org E-mail: info@nwba.org
Special Olympics Program Locator 1133 19th Street, N.W. Washington, DC 20036 1-202-628-3630 https://www.specialolympics.org/programs?locale=en *Check here to find a program in your area.	SportsAbilities 9249 South Broadway #200-156 Highlands Ranch, CO 80129 http://sportsabilities.com *We are the premier resource for people with disabilities to find recreational, advocacy, support, and sporting activities in the nation. We have calendars for every state and 27 different activities ranging from Team Sports to Social Gatherings.
Structured Athletics for Challenged Children of Iredell County (SACC) P.O. Box 1668 Mooresville, NC 28115-1668 (704) 664-7663 (704) 881-0759 http://www.structuredathletics.org E-mail: pressacc@charter.net *See "Sports" section for contact information for other chapters in N. Carolina and Tennessee	The Center for Courageous Kids 1501 Burnley Road Scottsville, KY 42164 270-618-2900 http://www.thecenterforcourageouskids.org E-mail info@courageouskids.org *The Center for Courageous Kids, also known as CCK, is a world class medical camp located in Scottsville, KY, serving children and families from across the country who are living with a variety of medical challenges. We are open year round and can host 120 kids at a time.
The Miracle League Association 1506 Klondike Road, Suite 105 Conyers, GA 30094 770 760-1933 770 483-1223 (Fax) http://www.miracleleague.com E-mail: Johnny@miracleleague.com *The Miracle League focuses on removing barriers which keep mentally and physically disabled children off the baseball field and lets them experience the joy of America's favorite pastime.Click on "Find a League" to find a league in your community.	The National Alliance for Accessible Golf 1733 King Street Alexandria, VA 22314 (703) 299-4296 (703) 739-0124 (Fax) http://www.accessgolf.org E-mail: info@accessgolf.org
The United States Association of Blind Athletes 33 N. Institute St. Colorado Springs, CO 80903 (719) 630-0422 (719) 630-0616 (Fax) http://www.usaba.org/ *See home page for Camp Information and Regional Offices in your area and state.	United States Quad Rugby Association 4000 Ridgeway Drive Birmingham, AL 35209 (205) 313-7431 http://usqra.org E-mail:president@quadrugby.com *The United States Quad Rugby Association provides opportunities, support, and structure for competitive wheelchair rugby to people with disabilities.
US Deaf Sports Federation PO Box 22011 Santa Fe, NM 87502-2011 TTY:(605) 367-5761 (605) 367-5760 (605) 977-6625 (Fax) https://usdeafsports.org Email: support@usdeafsports.org	US Electric Wheelchair Hockey Association 7216 39th Avenue North Minneapolis, MN 55427 763-535-4736 208-279-1368 (Fax) http://www.powerhockey.com PowerHockey� is based on basic hockey rules with a few adaptations to allow everyone in a power wheelchair the ability to participate.
US Youth Soccer TOPSoccer (The Outreach Program for Soccer 9220 World Cup Way Frisco, TX 75034 800-4SOCCER (972) 334-9960 (Fax) http://www.usyouthsoccer.org/programs/topsoccer/ E-mail: mmoran@usyouthsoccer.org A community-based training and team placement program for young athletes with disabilities, organized by youth soccer association volunteers. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4-19, who has a mental or physical disability. Contact for a program in your area.	USA Disabled Hockey 1775 Bob Johnson Dr Colorado Springs , CO 80906-4090 (719) 576-USAH (8724) (719) 538-1160 (Fax) http://www.usahockey.com/page/show/887219-disab... E-mail: usah@usahockey.org *Contains a listing of teams and disciplines all over the US. See Team Listings for a team near you.
VerySpecialCamps.Com http://www.veryspecialcamps.com An online camp directory for individuals with one or more of a wide range of special needs. Listings are by state.	VSA arts 2700 F Street, NW Washington, DC 20566 (800) 933-8721 (202) 628-2800 (202) 737-0725 (Fax) http://education.kennedy-center.org/education/vsa/ *With 52 international affiliates and a network of nationwide affiliates, VSA is providing arts and education programming for youth and adults with disabilities around the world. Check for VSA programs in your state.
Service Dogs/Canine Programs
Assistance Dog Institute/Bergin University of Canine Studies 1215 Sebastopol Road Santa Rosa, CA 95407 (707) 545-3647 http://www.berginu.edu Email: info@berginu.edu	Canine Companions for Independence P.O. Box 205 Farmingdale, NY 11735 (800) 572-2275 (TDD) http://www.cci.org Chapter Listings by Region
Canine Companions for Independence (CCI)/National Center P.O. Box Oceanside, CA 92052 (800) 572-2275 (760) 901-4300 (760) 901-4551 (Fax) http://www.caninecompanions.org *Contact for regional training centers and Veteran's Programs.	Delta Society National Service Dog Center 875 124th Ave. NE Suite 101 Bellevue, WA 98005 (425) 226-7351 http://www.deltasociety.org (Search for trainers and local training programs by state)
Dogs 4 Diabetics 1647 Willow Pass Road, #157 Concord, CA 94520-2611 (925) 246-5785 http://www.dogs4diabetics.com E-mail: info@dogs4diabetics.com	National Education of Assistance Dog Services, Inc/N.E.A.D.S. P.O. Box 213 West Boylston, MA 01583 (978) 422-9064 V/TDD (978) 422-3255 (Fax) http://www.neads.org E-Mail: info@neads.org *Contact for Regional contact information
The Sam Simon Foundation (Hearing Dogs) 30765 Pacific Coast Hwy #113 Malibu, CA 90265 V/TTY: (310) 457-5898 http://www.samsimonfoundation.com Email: info@samsimonfoundation.org
Transition/Post Secondary Schooling
Got Transition 1615 M Street NW, Suite 290 Washington, DC 20036 202-223-1500 202-429-3957 (Fax) http://www.gottransition.org E-mail: info@GotTransition.org *Our aim is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families. Serves as a clearinghouse for current transition information, tools, and resources.	Applied Self Direction 1089 Commonwealth Avenue, #371 Boston, MA 02215 http://www.appliedselfdirection.com E-mail: info@appliedselfdirection.com *Applied Self Direction provides practical expertise intended to create and operate self direction programs that run effectively and efficiently for individuals, states, managed care entities, Financial Management Services providers, and other stakeholders. The mission of Applied Self Direction is to promote self direction so individuals have the choice and control to live the lives they want.
Association on Higher Education And Disability (AHEAD) 107 Commerce Center Drive, Suite 204 Huntersville, NC 28078 (704) 947-7779 (704) 948-7779 (Fax) https://www.ahead.org/home *AHEAD is actively involved in all facets of promoting full and equal participation by individuals with disabilities in higher education; and supporting the systems, institutions, professions, and professionals who attend to the fulfillment of this important mission.	National Collaborative on Workforce and Disability for Youth (NCWD) 4455 Connecticut Avenue NW, Suite 310 Washington, DC 20008 877-871-0744 TTY: 877-871-0665 https://youth.gov/federal-agencies/national-col... *Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
National Gateway to Self-Determination http://www.ngsd.org *This site provides a single access for self-advocates, professionals, policy-makers and the general public on the current best practices and evidence-based activities in enhancing self-determination in the lives of people with developmental and intellectual disabilities, as well as any individual.
Transportation Information
Mercy Medical Angels 4620 Haygood Road suite 1 Virginia Beach, VA 23455 757-318-9174 757-464-1284 (Fax) http://mercymedical.org E-mail: info@MercyMedical.org *Our mission is to ensure that no financially stressed patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medically related transportation; further to ensure the provision of urgent transportation in situations of compelling human need and homeland security (disaster response) emergencies.	National Mobility Equipment Dealers Association 3327 W. Bearss Ave. Tampa, FL 33618 (800) 833-0427 (813) 264-2697 (813) 962-8970 (Fax) http://www.nmeda.com Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
National Mobility Equipment Dealers Association (NMEDA) Special Kids Fund (SKF) 732-397-5056 http://www.nmeda.com/special-kids-fund/ E-mail: dg@specialkidsfund.org *This program is designed to collect donated accessible vans and transfer them to families of individuals with disabilities. SKF also works to provide funding for families to purchase a handicap van conversion and have dealerships refurbish older and higher mileage vans for the needy.	School Transportation News P.O. Box 789 Redondo Beach, CA 90277 (310) 792-2226 310-792-2231 (Fax) https://www.stnonline.com *See Special Needs Transportation news, equipment, resources, etc.
US Department of Transportation 1200 New Jersey Ave, SE Washington, DC 20590 1 (202) 366-4000 TTY:(800) 877-8339 https://www.transportation.gov/accessibility *Accessibility - Equal Access to Transportation.


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