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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Dependency Determination (Military)
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
 

MINNESOTA

Advocacy
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body.
 
Agencies/Assistance Programs - Government
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
Minnesota Children with Special Health Needs
85 East Seventh Place
St. Paul, MN 55164-0882
(800) 728-5420
(651) 201-3650
(651) 201-3655 (Fax)
http://www.health.state.mn.us/mcshn
Minnesota Department of Human Services
(866) 333-2466
http://www.dhs.state.mn.us
*Service listings by County and Tribe.
Minnesota State Council on Disability (MSCOD)
121 East Seventh Place Suite 107
St. Paul, MN 55101
1-800-945-8913
(615) 296-6785
http://www.disability.state.mn.us
Minnesota's Medical Assistance Program ( Medicaid)
http://www.dhs.state.mn.us/hlthcare/asstprog/mm...
 
Agencies/Assistance Programs - Private
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org *State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance.
National School Foundation Association
2130 Grand Ave.
Des Moines, IA 50312
(515) 971-2324
(515) 965-5481 (Fax)
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state.
Assistive Technologies
Assistive Technologies of Minnesota
PO Box 310
Maple Plain, MN 55359-0310
(866) 535-8239
(763) 479-8239
http://www.atmn.org
E-mail: info@atmn.org
Minnesota Assistive Technology Act (STAR) Program
50 Sherburne Avenue, Room 309
Saint Paul, MN 55155
1-888-234-1267
(651) 201-2640
(651) 282-6671 (Fax)
http://www.starprogram.state.mn.us/
Child Care Resource Listings
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
 
Disability Specific Organizations
(Autism) Temple Grandin PhD.
http://www.templegrandin.com/templehome.html
*Great informational resource.
First Signs, Inc.
P.O. Box 358
Merrimac, MA 01860
(978) 346-4380
http://www.firstsigns.org
E-mail: info@firstsigns.org *Autism Training for families and professionals.
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
(763) 553-0020
http://www.ataxia.org/index.aspx
Neurofibromatosis, Inc.
P.O.Box 18246
Minneapolis, MN 55418
1- 800-942-6825
(301) 918-4600
http://www.nfinc.org/
Early Intervention
Programs for Children with Disabilities Ages 3 through 5
1500 Highway 36 West
Roseville, MN 55112
(651) 582-8343
http://education.state.mn.us
Programs for Infants and Toddlers with Disabilities Ages Birth through 2
1500 Highway 36 west
Roseville, MN 55113-4266
(615) 582-8436
TTY: (651) 582-8201
http://cfl.state.mn.us/mde/Learning_Support/Ear...
Services for Children with Special Needs - Early Intervention Network
14949 62nd. Street North
Stillwater, MN 55082-0006
(651) 430-6700
(651) 430-6000
http://www.co.washington.mn.us/info_for_residen...
 
Education
Minnesota Department of Education/Special Education
1500 highway 36 West
Roseville, MN 55113-4266
(651) 582-8289
http://education.state.mn.us/mde/Learning_Suppo...
National Center on Secondary Education and Transition
6 Pattee Hall, 150 Pillsbury Drive SE
Minneapolis, MN 55455
612-624-2097
612-624-9344 (Fax)
http://www.ncset.org/
email:ncset@umn.edu *Be sure to include address and phone number.
Housing Programs - Government
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information.
Minnesota Housing Finance Agency
400 Sibley Street, Suite 300
St. Paul, MN 55101
1-800-657-3769
(651) 296-7608
http://www.mnhousing.gov
E-Mail: mn.housing@state.mn.us
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
 
Housing Programs - Private
ABILITY Awareness
1440 E. 1st St., Suite 107
Santa Anna, CA 92710
(714) 277-4330
(949) 943-4496 (military/ Los Al
(714) 277-3743 (Fax)
http://www.abilityawareness.org/index.htm
Email: Info@ABILITYawareness.org *Builds accessible low income homes. **Provides outpatient reahbilitiation housing for wounded military members and their families. To contact ABILITY House at Los Al, please Email LosAl@ABILITYawareness.org
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org
 
Independent Living Organizations
Metropolitan Center for Independent Living
1600 University Ave., West, Suite 16
St. Paul, MN 55104-3834
(651) 646-8342
TTY: (651) 603-2001
(651) 603-2006 (Fax)
http://www.mcil-mn.org
Options Interstate Resource CIL
318 Third St., Northwest
East Grand Forks, MN 56721
(800) 726-3092
TTY: (218) 773-6100
(218) 773-7119 (Fax)
http://www.macil.org/options.html
*See home page for satellite offices
SMILES Center for Independent Living
709 S. Front St.
Mankato, MN 56001-3804
(888) 676-6498
TTY: (507) 345-7139
(507) 345-8429 (Fax)
http://smilescil.org/
*See home page for satellite offices. email: smiles@smilescil.org
 
Indian Health Services
Bemidji Area Indian Health Service
522 Minnesota Ave. NW, Romm 119
Bemidji, MN 56601
(218) 444-0458
(218) 444-0461 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
 
Information
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Georgia Mental Health Consumer Network, Inc.
http://www.gmhcn.org/links.html
* An informational/Resource Links site with information regarding many state/private programs. Contains information links for several states.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource.
Institute on Community Integration/University of Minnesota
102 Pattee Hall, 150 Pillsbury Dr. S.E.
Minneapolis, MN 55455
(612) 624-6300
(612) 624-9344 (Fax)
http://ici.umn.edu
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org
Project Exceptional Minnesota/Concordia University
275 N. Syndicate St.
St. Paul, MN 55104
(651) 603-6265
http://www.projectexceptional.org
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
 
Legal Advocacy/Information
Minnesota Disability Law Center
430 First Avenue North
Minneapolis, MN 55401
1-800-292-4150
(612) 332-1441
http://www.mndlc.org
Minnesota Legal Services Coalition
2324 University Avenue West
St. Paul, MN 55114
651-228-9105
651-222-0745 (Fax)
http://www.mnlegalservices.org/
E-mail: statesupport@mnlegalservices.org
National Association of Indian Legal Services
300 Third Street, Suite 210
Wausau, MN 54403
1-800-472-1638
http://www.judicare.org/nails.html
*See home page for state by state listing of service centers.
National Help Law Program (NHeLP) Washington, D.C. Office
1101 14th Street, NW Suite 405
Washington, DC 20005
(202) 289-7661
(202) 289-7724 (Fax)
http://www.healthlaw.org
Email: nhelpdc@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
Wright's Law
http://www.wrightslaw.com
 
Legislative
Children's Defense Fund
555 Park Street, Suite 410
St. Paul, MN 55103
(651) 227-6121
(651) 227-2553 (Fax)
http://www.cdf-mn.org
 
Medical Centers/Hospitals/Clinics
Children's Hospitals and Clinics of Minnesota - Minneapolis
2525 Chicago Ave.
Minneapolis, MN 55404
(612) 813-6100
http://www.childrensmn.org
Children's Hospitals and Clinics of Minnesota - St. Paul
345 N. Smith Ave.
St. Paul, MN 55102
(651) 220-6000
http://www.childrensmn.org
Twin Cities Shriners Hospital
2025 East River Parkway
Minneapolis, MN 55414
(888) 293-2832
(612) 596-6100
(888) 293-2832 (Fax)
http://www.shrinershq.org/shc/twincities
*Orthopedic
University of Minnesota Children's Hospital, Fairview
500 Harvard St.
Minneapolis, MN 55455
(888) 543-7866
http://www.uofmchildrenshospital.org/Services/S...
Other
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
 
Parent Support Programs
MELD Minnesota Early Learning Design
219 No. Second Street, Suite 200
Minneapolis, MN 55401
(612) 332-7563
National Technical Assistance Center/PACER Center
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
1-800-248-0822
(952) 838-9000
(952) 838-0199 (Fax)
http://www.taalliance.org
Ohio Coalition for the Education of Children with Disabilities (OCECD)
165 West Center Street, Suite 302
Marion , OH 43302-3741
(800) 374-2806
(740) 382-5452
(740) 383-6421 (Fax)
http://www.ocecd.org
email: oced@gte.net *Check for information in your state.
PACER Center Inc.
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
(800) 537-2237
(952) 838-9000
(952) 838-0199 (Fax)
http://www.pacer.org
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org * Provides a State by State guide to finding healthcare insurance coverage in your state.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist.
Adaptive Adventures ~ Chicago
2616 Wilmette Avenue
Wilmette, IL 60091
(847) 251-8445
(866) 679-2770
http://www.adaptiveadventures.org
E-mail: info@adaptiveadventures.org
Children's Theater Company
2400 Third Avenue South
Minneapolis, MN 55404-3597
(612) 874-0500
http://www.childrenstheatre.org/
Email: info@childrenstheatre.org
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information. *Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments.
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au *Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of camps and recreational facilities.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
Ski For Light, Inc.
1455 West Lake Street
Minneapolis, MN 55408
612-827-3232
http://www.sfl.org/
Email: info@sfl.org.
 
Service Dogs/Canine Programs
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Hearing and Service Dogs of Minnesota
2537 25th Avenue South
Minneapolis, MN 55406
(612) 729-5986
(612) 729-5914 (Fax)
http://www.hsdm.org/
Email: info@hsdm.org
National Education of Assistance Dog Services, Inc/N.E.A.D.S.
P.O. Box 213
West Boylston, MA 01583
(978) 422-9064 V/TDD
(978) 422-3255 (Fax)
http://www.neads.org/index.shtml
E-Mail: info@neads.org *Contact for Regional contact information
 
Transition/Post Secondary Schooling
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu/index.php?option=com_c...
E-mail: AskHEATH@gwu.edu *The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org *An excellent Post-High School education resource.
 
Transportation Information
Air Charity Network
National Headquarters 410 1st. Av. NW
Rochester, MN 55901
877-858-7788
http://aircharitynetwork.org/
Email:execdir@aircharitynetwork.org *Air medical transportation services. Contact for office in your region to apply.
HDS Specialty Vehicles
16290 Kenrick Loop
Lakeville, MN 55044
1-866-826-6176
952-435-8889
952-435-0057 (Fax)
http://hdsmn.com
E-mail: info@hdsspecialtyvehicles.com
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation
Tribal Contacts
Native American Family Empowerment Great Lakes-Inter-Tribal Council, Inc.
2932 Highway 47 North, P.O. Box 9
Lac du Falmbeau, WI 54538
Toll Free: (800) 472-7207
(715) 588-3324 (Fax)
http://www.glitc.org/
email:glitc@glitc.org *Serves Native Americans in Wisconsin, Michigan and Minnesota.