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Getting Started
Get Diagnosed
Gathering Important Information
Organizing Your Information
The Educated Parent
Early Intervention
What To Do First
What is Early Intervention?
Research
Introduction
Keeping an IEP Notebook
Preparing for an IEP Meeting
Conducting an IEP Meeting
Individuals With Disabilities Act
IDEA ACT - A Quick Reference
IDEA Legal Text
Family Finances
Recommended Resources
Housing
Introduction to Universal Housing Design
Housing options
Building a New House ~ That Works!
Introduction to Universal Housing Design
Entrances and Thresholds
Single Family Home Resources
Remodeled Bathroom
Ceiling Lifts
Problem Spaces
Adding a Ramp
Good Restroom
Not So Good Restrooms
Great Space Adaptions
Not So Great Adaptations
Ramp Design
Ramp Design (Part 2)
Commercial Ramps
Public Access Ramps
Adding a Ramp
Retrofit Door Sill Ramp
Insurance
Medical Bills
Filing an Appeal
Medical Expenses and Income Taxes
Finding Help for the Uninsured or Underinsured
Free or Discounted Prescription Programs
Medicaid Waivers
Legal Adults - Introduction
When to Start the Transition Process
Begin Transition - Age 14-16
Exploring Possibilities and Guardianship Issues - Age 17
Guardianship and Declaration of Incapacitation
Establishing Guardianship and Obtaining a Declaration of Incapacitation
Age 18
After High School Graduation - Age 19-22
Post High School Education Options
Future Housing Options
Dependency Determination (Military)
Specialized Medical Equipment
Wheelchair Evaluation
Wheelchair Safety
Introduction: Special Needs and the Military Family
DEERS & ID Cards
Dependency Determination
TriCare Introduction
TriCare Program Options
Exceptional Family Member Program (EFMP)
Individual Case Management
TriCare Extended Care Health Option (ECHO)
Early Intervention
Housing Options
Family Support Services
Community Contacts
Letters of Medical Sufficiency
Wheelchair Accessible Vans
Van Conversion: A good Example
Fund Raising - The Flamingo Air Project
 

NORTH DAKOTA

Advocacy
Louisiana Citizens for Action Now
http://www.lacanadvocates.org
Provides a wealth of self advocacy information. Linda recommends individuals check out the "Legislative Activities" section for an outline of a sample letter to Legislators and a "How-To" testify before a legislative body.
North Dakota Protection and Advocacy
400 East Broadway, suite 409
Bismark, ND 58501-4071
800-472-2670
701-328-2950
701-328-3934 (Fax)
http://www.ndpanda.org/
Agencies/Assistance Programs - Government
GovBenefits.Gov
http://www.govbenefits.gov
Provides information regarding government assistance programs nationwide. Includes a state-by-state program search.
North Dakota Association for the Disabled, Inc.
http://www.ndad.org
**See homepage for the office nearest you.
North Dakota Department of Children's Special Health Services
600 East Boulevard Avenue, Dept 325
Bismarck, ND 58505-0250
Toll Free in ND (800) 755-2714
(701) 328-2436
http://www.nd.gov/humanservices/services/medica...
North Dakota Dept. of Human Services/Services to Individuals With Disabilities
1237 W. Divide Ave., Suite 1A
Bismarck, ND 58501-1208
Toll Free: (800) 755-8529
TTY: (701) 328-8968
(701) 328-8969 (Fax)
http://www.state.nd.us/humanservices/services/d...
email: dhsds@state.nd.us
Agencies/Assistance Programs - Private
Cover the Uninsured ~ A Project of the Robert Wood Johnson Foundation
(202) 572-2928
http://covertheuninsured.org
E-mail: info@covertheuninsured.org *State by state listings of various insurance programs for individuals and families who have difficulty obtaining medical insurance.
National School Foundation Association
2130 Grand Ave.
Des Moines, IA 50312
(515) 971-2324
(515) 965-5481 (Fax)
http://www.schoolfoundations.org
* Provides a Listing of Foundations by State (click on menu in left-hand menu). Excellent resource for those needing foundation information in each state.
Child Care Resource Listings
Child Care Aware
3101 Wilson Blvd. Suite 350
Arlington, VA 22201
1-800-424-2246
TTY:1-866-278-9428
(703) 341-4101 (Fax)
http://www.childcareaware.org
Child Care Aware is a cooperative program of the National Association of Child Care Resource and Referral Agencies. Funded through the Office of Family Assistance, Administration for Children and Families, U.S. Department of Health and Human Services. **SNRP does NOT endorse this site. Listed for reference only. Use responsible caution when investigating ALL care providers.
 
Disability Specific Organizations
(Autism) Temple Grandin PhD.
http://www.templegrandin.com/templehome.html
*Great informational resource.
University Centers for Excellence in Developmental Disabilities/Minot State University
500 University Avenue West
Minot, ND 58707
(800) 233-1737
(701) 858-3580
http://www.ndcpd.org
Early Intervention
K.I.D.S. St. Joseph's Hospital
30 West 7th Street
Dickenson, ND 58601
1-866-483-4394
(701) 483-4394
(701) 225-9669 (Fax)
http://www.stjoeshospital.org/Nursery.htm#KIDS
North Dakota - Programs for Infants and Toddlers Ages: Birth through 2
600 South 2nd Street, Suite 1A
Bismarck, ND 58504-5729
Toll Free in ND: (800) 755-8529
(701) 328-8936
http://ndearlyintervention.com
Programs for Children with Disabilities Ages: 3 through 5
600 East Boulevard Avenue, Dept. 201
Bismarck, ND 58505-0440
(701) 328-2277
TTY: (701) 328-4920
http://www.dpi.state.nd.us/speced/index.htm
Right Track Program/Developmental Disabilities
600 South 2nd Street, Suite 1A
Bismarck, ND 58503
1-800-755-8529
(701) 328-8930
http://www.nd.gov/humanservices/services/disabi...
*Parent Information Resource Center (PIRC) 1-888-763-7277 OR (701) 837-7510
Education
Department of Public Instruction - Special Education
600 Ea. Boulevard Ave., Dept. 201
Bismarck, ND 58505-0440
(701) 328-2277
http://www.dpi.state.nd.us/speced/index.shtm
Mountain Plains Regional Resource Center (Utah State University)
1780 N. Research Parkway, Suite 112
Logan, UT 84341
(435) 752-0238
http://www.rrfcnetwork.org/mprrc
The MPRRC serves Arizona, the Bureau of Indian Affairs, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming. Click on your state from this home page for events and information in your area.
North Dakota Parent Assistance and Supportive Schools (NDPASS)
1600 2nd Avenue S.W., Suite 19
Minot, ND 58701-3459
Toll Free in ND: 888-763-7277
(701) 837-7510
http://www.ndpass.minot.com
UND Disability Support Services
2891 2nd Ave. North Stop 9040
Grand Forks, ND 58202-9040
V/TTY (701) 777-3425
(701) 777-4170 (Fax)
http://www.und.nodak.edu/dept/dss
Equipment
North Dakota Interagency Program for Assistive Technology (IPAT)
3509 Interstate Blvd.
Fargo, ND 58103
1-800-895-4728
(701) 365-4728
(701) 365-6242 (Fax)
http://www.ndipat.org/
 
Housing Programs - Government
DisabilityInfo.gov ~ Housing
http://www.disabilityinfo.gov
*Provides a comprehensive listing of Federal and State housing programs and up to date program information.
North Dakota Housing Finance Agency
1500 East Capitol Avenue
Bismarck, ND 58502-1535
(800) 292-8621
(701) 328-8080
http://www.ndhfa.org
*See home page for information links regarding home accessibility grants for the disabled.
Paralyzed Veterans of America
801 18th Street NW
Washington, DC 20006-3517
1-800-424-8200
http://www.pva.org
*Not just for paralyzed Veterans, not just for paralysis. Ask for their Architecture Program! **SNRP recommends their publication "Accessible Home Design".
 
Housing Programs - Private
ABILITY Awareness
1440 E. 1st St., Suite 107
Santa Anna, CA 92710
(714) 277-4330
(949) 943-4496 (military/ Los Al
(714) 277-3743 (Fax)
http://www.abilityawareness.org/index.htm
Email: Info@ABILITYawareness.org *Builds accessible low income homes. **Provides outpatient reahbilitiation housing for wounded military members and their families. To contact ABILITY House at Los Al, please Email LosAl@ABILITYawareness.org
Center For Universal Design North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
V/TTY:(919) 515-3082
(919) 515-3023 (Fax)
http://www.design.ncsu.edu\cud
Institute for Human Centered Design (Adaptive Environments)
180-200 Portland Street, Suite 1
Boston, MA 02114
(617) 695-1225
(617) 482-8099 (Fax)
http://www.adaptenv.org
E-mail: info@HumanCenteredDesign.org
 
Independent Living Organizations
Dakota Center for Independent Living
3111 East Broadway Ave.
Bismarck, ND 58501
(701) 222-3636
(701) 222-0511 (Fax)
http://www.dakotacil.org
email: dcil@dakotacil.org
Independence Inc.
300 3rd Ave. SW, Suite F
Minot, ND 58701-4308
(701) 839-4724
(701) 838-1677 (Fax)
http://www.independencecil.org
email: agency@independencecil.org
Options Interstate Resource CIL
318 Third St., Northwest
East Grand Forks, MN 56721
(800) 726-3092
TTY: (218) 773-6100
(218) 773-7119 (Fax)
http://www.macil.org/options.html
*See home page for satellite offices
 
Indian Health Services
Aberdeen Area Indian Health Services
115 4th Avenue Southeast
Aberdeen, SD 57401
(605) 226-7531
(605) 226-7321 (Fax)
http://www.ihs.gov/FacilitiesServices/AreaOffic...
Native American Training Institute
3333 E. Broadway Ave, Suite 1210
Bismarck, ND 58501
(701) 255-6374
(701) 255-6394 (Fax)
http://nativeinstitute.org/index.htm
*The Native American Training Institute provides unique, culturally-relevant training and curriculum packages for professionals working with Native American children and families. Contact for more information.
Information
American Indian Disability Technical Assistance Center
University of Montana Rural Institute 52 Corbin Hall
Missoula, MT 59812-7056
Toll Free: 1-866-424-3822
(406) 243-2349 (Fax)
http://aidtac.ruralinstitute.umt.edu/
*Large Native American Resource List.
Beach Center on Disability/University of Kansas
1200 Sunnyside Ave. Room 3136 Haworth Hall
Lawrence , KS 66045-7534
(785) 864-7600
TTY (785) 864-3434
(785) 864-7605 (Fax)
http://www.beachcenter.org
email:beachcenter@ku.edu
DBTAC Rocky Mountain ADA Center
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
1-800-949-4232 V/TTY
(719) 444-0268 (V/TTY)
(719) 444-0269 (Fax)
http://www.ada-infonet.org
*Provides information on the Americans With Disabilities Act (ADA)
Disability Information.Gov
http://www.disabilityinfo.gov
*Large Federal database providing easy access to comprehensive information about disability programs, services, laws and benefits. To find disability resources in your state just click on the Find State and Local Resources map located in each of the subject areas listed in their menu.
Girls Health.gov
8270 Willow Oaks Corporate Drive, Suite 301
Fairfax, VA 22031
http://4girls.gov
*See "Illness and Disability" tab. Excellent information resource.
Learning Disabilites of North Dakota
7840 Arcata Drive
Bismarck, ND 58501
(701) 222-1490
MedicareSolutions
http://www.medicaresolutions.com/disability-res...
*A comprehensive page on disabilities providing informative links in several areas of interest including Disability Rights, support groups, government resources and organizations and others.
National Organization on Disability
910 Sixteenth Street, N.W., Suite 600
Washington, DC 20006
(202) 293-5960
TTY: (202) 293-5968
(202) 293-7999 (Fax)
http://www.nod.org
E-mail: ability@nod.org
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
800-404-2898
(718) 803-3782
(718) 803-0414 (Fax)
http://www.unitedspinal.org/disability-publicat...
*Linda's favorite down-loadable informational resource. Linda recommends the following booklets: Disability Etiquette (PDF), Taking Action (PDF), Adaptive Automotive Equipment (PDF), The Americans with Disabilities Act (PDF),The Fair Housing Amendments Acts (PDF) and Accessing Local Government (PDF). Please see the menu page for other publications you may be interested in.
 
Legal Advocacy/Information
National Health Law Program (NHelp) Main Office
2639 South La Cienega Blvd
Los Angeles, CA 90034-2675
(310) 204-6010
(310) 204-0891 (Fax)
http://www.healthlaw.org
Email: nhelp@healthlaw.org * NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
Wright's Law
http://www.wrightslaw.com
Medical Centers/Hospitals/Clinics
Merit Care Children's Hospital
801 Broadway N.
Fargo, ND 58122
(701) 234-2000
http://www.meritcare.com
 
Other
Disability Studies, Temple University Blog
http://disstud.blogspot.com
*Based at Temple University but with nationwide contributors. Has a LARGE list of disability related blogs.
 
Parent Support Programs
North Dakota Pathfinder Family Center
Arrowhead Shopping Center 1600 2nd Ave. Southwest, Suite 30
Minot, ND 58701-3459
(701) 837-7500
(701) 837-7548 (Fax)
http://www.pathfinder.minot.com
email: ndpath01@ndak.net
PEAK Parent Center, Inc Region 5
611 North Weber, Suite 200
Colorado Springs, CO 80903
(800) 284-0251
(719) 531-9400
http://www.peakparent.org
email: region5ptac@peakparent.org
Patient Assistance Programs
American Dental Association ~ Give Kids A Smile Program
http://www.givekidsasmile.ada.org/findGKAS.asp
*This is a yearly clinic in most communities. Click on the Clinic locator to find a clinic in your area.
Cover the Uninsured
http://covertheuninsured.org
Email: info@covertheuninsured.org * Provides a State by State guide to finding healthcare insurance coverage in your state.
Merck Patient Assistance Programs
P.O. Box 100
Whitehouse Station, NJ 08889-0100
908-423-1000
http://www.merck.com/responsibility/pap-informa...
Merck offers a family of programs providing free and discounted medicines to patients who cannot afford their prescribed medicines.
NeedyMeds
P.O. Box 219
Gloucester, MA 01931
http://www.needymeds.org
NeedyMeds is a 501(c)(3) national non profit, has information on programs that help people who can't afford their medications and health care costs. Provides data regarding approximately 2400 programs and nearly 11,000 free/low-cost/sliding-scale clinics.
Partnership for Prescription Assistance
1-888-477-2669
http://www.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Partnership for Prescription Assistance Kids
1-877-369-1477
http://kids.pparx.org
The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. More than 2,500 brand-name and generic medicines are covered.
Pfizer Helpful Answers
1-866-706-2400
http://www.pfizerhelpfulanswers.com
Pfizer Helpful Answers is a family of assistance programs for uninsured and underinsured patients who need help getting their Pfizer medicines. These programs provide: •Pfizer medicines for free or at a savings to patients who qualify •Some programs also offer reimbursement support services Call for more information.
RxAssist
111 Brewster Street
Pawtucket, RI 02860
401-729-3284
401-729-2955 (Fax)
http://www.rxassist.org
Email: info@rxassist.org Patient Assistance Program Center ~ Offers a comprehensive database of programs and information.
Recreation
Ability Station
278 South 880 West
Spanish Fork, UT 84660
800-520-1222
http://www.abilitystation.com
Ability Station offers toys for special needs children needing sensory, fine motor and gross motor,and cognitive development. Toys are reviewed by an Occupational, Physical or Speech Therapist.
Dakota West Arts Council
215 N. 6th Street
Bismark, ND 58501
(701) 222-6640
http://www.dakotawest.org
FlagHouse Inc.
601 FlagHouse Drive
Hasbrouck Heights , NJ 07604-3116
http://www.flaghouse.com
*Need a grant? Click on "Grant Writing Center" in the bottom menu for more information. *Supplier of Special Needs equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multisensory environments.
Liberty Swing
http://www.libertyswing.com.au
For information E-mail: Australia office at diane@libertyswing.com.au *Playground swing equipment for people with disabilities which enable children in wheelchairs to enjoy the fun and recreation of swinging.
National Center on Physical Activity and Disability
1640 W. Roosevelt Road
Chicago, IL 60608-6904
1-800-900-8086
1-312-355-4058 (Fax)
http://www.ncpad.org/
Email: ncpad@uic.edu. *Maintains a State-by-state listing of camps and recreational facilities.
National Park Service/Accessible Opportunities in National Parks
http://www.nps.gov/pub_aff/access/opportunities...
*Contact information is available by Park. Check out the left-hand menu for more National Park accessibility information.
National Parks Pass
http://www.nps.gov/fees_passes.htm
*Updated information regarding free access passes to National Parks for U.S. citizens or permanent residents with permanent disabilities.
Special Olympics North Dakota
2616 So. 26th Street
Grand Forks, ND 58201
(701) 746-0331
(701)772-1265 (Fax)
http://www.specialolympicsnd.org
Service Dogs/Canine Programs
Canine Companions for Independence (CCI)/National Center
P.O. Box
Oceanside, CA 92052
(800) 572-2275
(760) 901-4300
(760) 901-4551 (Fax)
http://www.caninecompanions.org
*Contact for regional training centers and Veteran's Programs.
Great Plains Assistance Dogs Foundation
920 Short Street
Jud, ND 58454
(877) 737-8364
(701) 685-2290
http://www.greatplainsdogs.com/
Positive Partners Assistance Dogs, Inc.
P.O. Box 2088
Hailey, ID 83333
(208) 721-1309
* Trains wheelchair assistance, hearing assistance, guide dogs and mobility assistance dogs. Will train dogs for anyone in the United States.
 
Transition/Post Secondary Schooling
HEATH Resource Center/ George Washington University
2134 G Street, N.W.
Washington, DC 20052
http://www.heath.gwu.edu/index.php?option=com_c...
E-mail: AskHEATH@gwu.edu *The HEATH Resource Center gathers and disseminates information to help people with disabilities reach their full potential through postsecondary education and training. Contains a wealth of information and resources on a wide variety of subjects related to education.
National Collaborative on Workforce and Disability for Youth (NCWD)
4455 Connecticut Avenue NW, Suite 310
Washington, DC 20008
877-871-0744
TTY: 877-871-0665
http://www.ncwd-youth.info
*Federal informational program site. Excellent resource. Click on "Content By State" for programs in your area.
Virginia College Quest
George Mason University
, VA
http://www.vacollegequest.org/index.shtml
E-mail: info@vacollegequest.org *An excellent Post-High School education resource.
 
Transportation Information
Freewheel Mobility
109 Iowa Avenue
Colorado Springs, CO 80909
(719) 635-7800
1-800-728-5313
(719) 636-2718 (Fax)
http://www.freewheelvans.com
E-mail: freewheel@freewheelvans.com * Multiple locations in Colorado and Utah. Nationwide delivery.
National Mobility Equipment Dealers Association
3327 W. Bearss Ave.
Tampa, FL 33618
(800) 833-0427
(813) 264-2697
(813) 962-8970 (Fax)
http://www.nmeda.org/
Email: nmeda@aol.com *Provides a state-by-state listing of NMEDA QAP certified dealerships. Start here when looking for mobility equipment (lifts, vehicles, steering systems, etc.) information.
School Transportation News
P.O. Box 789
Redondo Beach, CA 90277
(310) 792-2226
http://www.stnonline.com/stn/
*See Special Needs Transportation